ToriT

Thanks so much for your replies. I printed out the entro link and the testing link. My doctor did two tests Iga and igg I think??? something like that. I requested copies of the blood work which they did not send. They did send an overall review which did not list the blood work numbers. Yes, you are correct that at least I am on the right track. At...

lol thanks! Needed that email hug... it is a roller coaster ride with testing and feeling ill. ToriT

I will do my BEST to keep this short. I have been sick for several years now and have been bouncing around to different doctors but still have no answers for my physical problems. I learned about celiacs and found a local doctor who advises our local celiac group. Prior to making the appointment with him I had gone gluten-free on my own for about a month...

PS i have made an appointment with digestive doctor. I have been waiting months. End of march I see him! But I have somewhat reduced gluten. I know I have to keep eating gluten to test correctly but it is hard to eat it when I think it may be the cause of my problems. Feels like i am putting poisen in my body if this is in fact the cause of my symptoms.

Ahhh Ian, I was a special education teacher in public school. I know the system and how cruel it can be. The school system is harsh towards any one not in the "norm". The other students are not so cruel as the media seems to protray. The system does seem to place blame on the student with special needs and their parents. I am sorry you had to indure that...

I finally have an appointment to get my digestive system checked out . I hope I find some answers. I do not know if i can handle hearing "everything is fine". There has to be an answer and solution for these ill feeings. My friend has many physical problems and has FIBO, positive for lupus anti bodies, bones of an eighty year old ect.... Her hands clamp...

Thank you Kaiti I just did what you suggested and came up with one name. I will research them. I am Pittsburgh PA. Thank you for your help! God bless YOU too. ToriT

THANK YOU, THANK YOU... This is a very hard journey. I am feeling awful at the moment and getting the hand tremors do you all get that too? I wonder why people present with differing signs and symptoms? This is one disease that seems possible in my case. I do need to find the correct doctor. Are these tests for celiac disease often misread by...

As I read through the posts in this section. I can see the same frustration I have about being un-diagnosised. It is hard to not be able to take action when you have no starting place! Today happens to be a good day for me, so far. This can change and usually does around 1:00(pm)-ish. When people talk about "fatigue" it can mean various things and can present...