up late

The rhuematology workup was normal except for high calcium, it's been both high and normal before so he's retesting. He also said if I have another flare up I can get seen straight away so I'm not going to be left to deal with it all on my own like I was back when all this started.

I'm having a LOT of trouble loading this site, can someone post a link to the low fi version? *crossed fingers I don't lose this post too* Alergy clinc today, they did a diet review, I am totally gluten-free. Amines, preservatives and dairy are now removed completely on a month trial. I had some improvement cutting down from what info I had over the...

I would definitely talk to your doctor about this and I'd be extremely careful if they increase your dose. Alcohol increases the effect of medications, it can also increase the effects of food intolerances. Rum has a reputation for making people aggressive but I think that's a bit of an urban myth. I can't take Lexapro. I tried it once, took just one tablet...

I've been getting this for years, the nightmares, yelling, waking up, even sleepwalking, it's worse when I'm under stress or overtired. I got told I had PTSD :/ (combined with anxiety and odd sensations that went away gluten-free) I'm starting to think now it's not that at all.

My knees and calves have started to go down a bit, the bottom of my calves tho feel hard as a rock. I've managed to get things to settle a bit with the anti inflammatory, strong OTC pain relief, wearing tight stockings and staying off my feet, fingers crossed nothing else happens before I get to the specialists. I've just stripped my diet back to something...

Hi Loey, You're in good company, seems a lot of people on the board have had similar problems. I don't know how routine blood tests are after a coeliac diagnosis, I had to ask to have my vitamin levels checked becuase of vitamin deficiency symptoms, I also requested a bone density scan because I was getting bone pain, not to alarm you but I have osteoperosis...

I didn't leave alcohol out of the equation. I usually try cider, wine or champagne and don't often get to the 2nd drink before I feel like I have a blinding post bender type hangover that lasts several days, I tried top shelf scotch once and got the same reaction. Needless to say it's not something I've done often.

I'm already booked into the allergy clinic for review next month but I'm pretty sure it's not gluten, if anything I'd be looking at amines which I had a mild reaction to, I'm ok to eat it but it might be causing me some problems if I'm eating too much of it. Things like the fruits, salads, veg and Asian style foods I substituted for the cake/deserts, bread...

You're not going to believe it but I had another flare up just before the weekend. After 3 ER visits, 2 drs rooms, 4 chemist shops, a rhumatologist, 3 medication reviews and much gripeing about the healthcare system (mostly from the drs) I finally landed on a drug combination that's showing some promise (prescription anti inflamatories, something to kill...

Ack, now my computer's decided to play up. I've just read the referral to the rhumatologist, my Dr's put in the neurologist report, it suggests I should be referred to a psychiatrist!!! It's pathetic, I'm suffering and the people who are supposed to be getting to the bottom of it are off speculating about my sanity? I'm sick of drs who write patients...

I went back to the Drs, he thinks it's most likely Fibromyalgia, I'm not just going to accept a diagnosis if I can't see sufficient evidence that I have it though. Especially when it doesn't fit the profile, doesn't respond to treatment and is progressing, so for what it's worth I'm off to a rhumatologist next. I'm going back to the allergy clinic later as...

I was negative for the antibodies but positive for the genotype, apparently that's something that happens with the igA deficiency. A Dr I spoke to recently said they have a new blood test they do when they test antibodies because the one I was negative for wasn't reliable. Shingles could be a possible, my grandmother used to get it, she was actually hospitalized...

I go back to the GP tomorrow. I expect the next referral will be to a rhumatologist who'll likely check my thyroid again, I'm pretty sure my GP didn't do T3. B and parathyroid were fine. Could my ovaries have anything to do with it? My free testosterone is slightly high (cholesterol, BP, estrogen and progesterone normal) I've had problems with cysts before...

What's the treatment for Lyme? I've already had several kinds of antibiotics for various other things (keflex, flagyl, doxycyline, and trimethoprin) and multiple courses including long term low doses. This started after I got out of hospital when I was on trimethoprin, the first symptoms I had sound like viral encephalitis before it suddenly turned into what...

RPA was where I went, I did the elimination diet too. So many kids there, for a while I thought I was their only adult patient. .