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Scatabrain

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Everything posted by Scatabrain

  1. Scatabrain
    Thanks for the input. I think I have pushed the limits with the Doc on asking questions. About the only thing I could do now is just request a copy of all of my detail records. I have no further details on the biopsy. Clarification on diagnosis: initially, after seeing the biopsy, he ordered a second blood test and asked me to start the gluten-free...
  2. Scatabrain
    Here is enterolab results: Gluten Sensitivity Stool Test Fecal Anti-gliadin IgA 28 Units (Normal Range is less than 10 Units) Soy Sensitivity Stool Test Fecal Anti-soy IgA 14 Units (Normal Range is less than 10 Units)
  3. Scatabrain
    Thanks for the extensive thoughtful response. To answer your question about gene test: I had it done by my GI doc already and didn't want to pay money for Enterolab for it - Celiac Risk Genes Detected: Category #3, DQ8 heterozygous, Increased Risk 2x, Relative Risk Moderate. I know that this doesn't tell you if you have it or not just if you have the...
  4. Scatabrain
    I had an opportunity to send a communication to my doc about another matter and included the results of the enterolab as well well see. I highly doubt he is going to give it credence but insteD repeat what he has said before - if I am not clinically celiac I may still be gluten intolerant and if I want I could eat be gluten-free by my choice. I don't fully...
  5. Scatabrain
    Thanks for your thoughtful reply. Before I was gluten-free the first time I was getting 2 migraines a week. They were fairly intense. I have had off and on D all my life. I just got used to it. I have found over the past weeks that Avoiding dairy and soy has seemed to help in that regard. Gluten seems to have no effect one way or the other on D. The...
  6. Scatabrain
    Hello All! Since my last post my doc has changed his opinion and told me that he believes that I do not have Celiac. We did 2 blood tests and both came back negative. He attributes the damage seen during biopsy to overuse of advil. I asked for a second opinion on the biopsy and the 2nd doc agreed. It took some time for me to adjust to the change but after...
  7. Scatabrain
    This document IMHO is outstanding material to bring to your child's doctor: Open Original Shared Link The page where this doc came from also contains lots of other good stuff: Open Original Shared Link
  8. Scatabrain
    Thanks Skylark for the suggestion. I am told that blood test details are in the mail!
  9. Scatabrain
    Hello All. Great topic! I am newly diagnosed (sort of by accident - my bloods were negative and they were doing the Endo for other reasons and voilla). I am going to push to have both of my kids, my siblings and my parents tested. My son says 'my tummy hurts' a lot. I'm not a doctor of course and don't jump to conclusions but every time he says...
  10. Scatabrain
    Thanks to you both for the quick replies. The Doc is very busy but very responsive. I am very happy with him. That's great advice about asking for the blood tests before hand. I believe I can do that through the provider's website fairly easily. My symptoms are not too severe (except the migraines which are getting worse) so I am worried that relying...
  11. Scatabrain
    Hello All! This is my first post. I have read a lot of your posts. What a great supportive community! I have had several relatively minor GI complaints over the last 10 years and migraines. The problems became a bit more aggravating over the past year but I don't have any where near the degree of problems that I read on these boards - I feel for you...
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