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ToHelpMySon

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  1. lizajane - Thanks for the encouragement! It is hard w/o insaurance because I want to have the test done but that is just not a possibility and I don't know when it will be. I don't want to wait for my insurance, I want to feel better now. I know what you mean about the biopsy for your son, it was very hard to watch my baby go through that but I am glad we...
  2. Kay - Thank you for that link, I appreciate it! I am actually going to a class at The Children's Hospital tomorrow for parents who have children with celiac disease, per the GI doc. I really hope it helps me gain a better understanding of where gluten is hidden. I have avoided anything that says gluten-free but says "Processed on the same equipment as wheat...
  3. My 16 month old has been on a gluten-free diet for 5 days now and I have shifted his snacks and meals heavily to fruits and veggies. Occasionally he snacks on gluten-free cereal like Chex Honey Nut Gluten-Free cereal. I also have shifted focus to meats and dairy products that are gluten-free. I have yet to give him any gluten-free breads or pastas because...
  4. My son's GI @ TCH's here in Colorado said his biopsy is POSITIVE but his blood tests are NEGATIVE for Celiac. She said she is confused by this and actually told me "the blood tests are so accurate". From all the research I've done and from all the Celiacs I have spoken with, they have all said blood tests for celiac disease are notoriously inaccurate, especially...
  5. Peter, Thank you for responding, I appreciate it! Is there a particular reason that blood tests on young children are so inaccurate? I am going to start my son on a gluten-free diet ASAP, as overwhelming as it seems I do think the end results will be well worth it. I don't have insurance nor the money for myself to be tested so I think I will just...
  6. This is my first time here and I am desperately seeking some help and advice. My son is 16 months old and he has had severe acid reflux since birth and has been seen by Denver Children's Hospital since that time. At the age of 12 months he had a 2nd UGI, which showed continued reflux and because his Pediatrician felt he should have outgrown it they decided...
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