Kate35

Hello. I was diagnosed with celiac disease 6 years ago. I tested both of my kids at that time and they were negative, but one was positive for both genes DQ8 and DQ2 and another was only positive for DQ2. The child who tested positive for both genes does not seem to have problems with gluten. The other child has major GI issues. We eat mostly gluten...

Are you concerned about coffe or tea being contaminated with gluten? What kind of "fancy coffee"? Do you not even bring it up (gluten issue) at the restaurant? Ideally, I would like to not mention it.

The nature of my work involves meeting people which inevitably involves going out and eating out. I always get nervous when ordering but at the same time I don't want to attract too much attention and cause my disease to become atopic of conversation.... How do you handle it? What do you typically order? I am most,y having problems with "let's meet at...

Yes, but I feel so sad... Thinking how he will go through teenage years... College? Dating? I am just driving myself insane. On one hand, I am happy that he is feeling better, but this diagnosis entails so much... I can handle it, but the idea of my kid having this... I cannot sleep, cannot eat... Anybody going through this?

I wanted to give you a quick update... I fed my son complete gluten-free diet for a week and he gained 4lbs... I don't know how to rect... He had a completely normal celiac panel test a little less than a year ago... Does it mean he is a celiac if he responded to the diet? Could he be just sensitive? I cannot stand an idea of him going through what I did...

I will definitely have his thyroid checked... Interesting... It seems like most kids whose parent is a celiac develop it at some point if their lives... Or am I mistaken? My GI assured me that chances f them developing it are very slim... Like less than 10%. Now after reading your posts, it seems like almost 100%.

Yes, that is what I have been doing-cooking on vacation... However, I dream of going to Europe and it would be nice to sample out their restaurants while there... It is all part of the experience...But nt sure if that is an option

Thank you for your reply! That is certainly very encouraging!!!

Since being diagnosed, we only vacationed once at a cruise, and it was wonderful! However, i would love to go to an all inclusive resort... But not sure how well grey will handle our food issues. What do you guys do? I was also hoping to go to Euroe bed year but cannot even begin to think how I will be able to eat there... Appreciate your insights! ...

Thank you for your replies! I got more info here than I got from my doctor...

I just had a physical with my 10 yo son and it appears that he has not ganed even a pound in one year!!!! He grew one inch which my pediatrician thinks is completely normal. She told me to increase his calorie intake and add oil and butter to every meal...Now, because I am celiac, I did persuade her to have him tested last year and h was egatve. It was...

I actually was wondering about the same thing. I am praying every day that my kids don't develop celiac , and I am thinking of going completely gluten-free to minimize ther risk f developing celiac later in life. However, other people are telling me that this approach might actually backfire and they could develop sensitivity to gluten if they don't ingest...

No, I saw the results- they were unequivocally negative. My only concern with the true validity of the results was the that they were on a "semi gluten free diet" at a time meaning they were eating very little gluten and mainly in school... I am just not sure what the healthiest diet for them would be... I mean nutrition wise you cannot even begin to...

I was diagnosed with Celiac Disease a couple years ago. Have been on a very strict gluten free diet ever since... Tested my kids immediately for antibodies and neither of them was positive. Now, I do notice that their bellies get bloated after a big spaghetti dinner, but it could be just me watching them a bit too closely... My oldest has asthma and multiple...

Thank you all so much for your suggestions! Your support means so much to me! I am on the elimination diet now, will see what happens... Enjoy the holiday weekend!