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mommyoftwinks

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Latest Celiac Disease News & Research:

Everything posted by mommyoftwinks

  1. mommyoftwinks
    could these be factors associated with celiac?
  2. mommyoftwinks
    i called the hershey company after reading conflicting things online about the cadbury mini eggs. i got VERY itchy and only added these to my diet. the company said they are gluten free? anyone else have issues with them?
  3. mommyoftwinks
    can i get any of these at whole foods? or can you recommend something i can get there?
  4. mommyoftwinks
    looking for some wraps that don't crack when you roll them. i miss my super-soft wraps!
  5. mommyoftwinks
    I am in Suffolk but am willing to travel West!! I wanted to make an appt in NYC at Columbia but the wait is a few months. Is there anyone that can help me? I have gone to two other GI's here and neither were very knowledgeable and my rash (possible DH) seems to be a mystery to everyone.
  6. mommyoftwinks
    are these gluten-free? i can't seem to find any info on their website. they are the holiday kisses - white chocolate with candy cane pieces inside of them.
  7. mommyoftwinks
    yes and my legs haven't looked 'themselves' for about a year. LOL. i would hate to have another biposy off my leg but would do it.
  8. mommyoftwinks
    I had a 'hive' biopsied. the a** never tested them for celiac; instead he tested them for vasculitis. ugh!
  9. mommyoftwinks
    i had an endoscopy back in 2007 and was told i didnt have 'evidence' of celiac. (constipation and bloating all my life and 'new' evidence of hives started). that was it. to be honest, i do think they biopsied me but am not 100% sure. when i took my reports to another doc for a 2nd opinion, he said the report didn't say where they got the biopsy from...
  10. mommyoftwinks
    i am not sure.... this is them and i cant get a hold of the box or any info about them on the website. Open Original Shared Link
  11. mommyoftwinks
    had a horrible rash/breakout/reaction. does anyone know if their miniature candy canes are gluten free? their website doesnt give any information.
  12. mommyoftwinks
    while i was at whole foods today i bought a bag of gluten-free marshmallows. HOWEVER, i didn't know these weren't gluten-free already? are they gluten-free?
  13. mommyoftwinks
    i have done biopsies (not done correctly apparently) and blood tests galore. is there a way i can do a 'test' on my own to see if i do in fact have dh?
  14. mommyoftwinks
    im not sure why everything is such a secret. ugh! i looked on their site - where are the ingredients in their syrups?
  15. mommyoftwinks
    does the Caramel Brul
  16. mommyoftwinks
    the website says this drink does not have wheat in it. however, on some other posts on this website, people said it did in fact contain gluten. does anyone know?
  17. mommyoftwinks
    i had someone there look at the label and she said none of the syrups contain wheat? i'm confused, though...i just assumed they either would or they wouldn't, you know? i emailed them three weeks ago and have yet to hear a response.
  18. mommyoftwinks
    yes, i am gluten-free as well...
  19. mommyoftwinks
    i have eczema/hives as a result of a wheat sensitivity. my derm gave me two scripts. one called, Open Original Shared Link and the other, Open Original Shared Link. (One was greasier and for nighttime and the other for daytime.) Would any of these help my skin condition get better faster? I am wheat-free but this is taking some time!! UGH!
  20. mommyoftwinks
    yes that is why i was given the candibactin. i just re-read the labels and it said both containers said - GLUTEN FREE
  21. mommyoftwinks
    i had gone to some 'regular' docs as well who all said i did not have celiac. they did a celiac blood panel and said it was negative and also tested me for a gluten allergy. i am not sure what to do anymore. i can not get rid of this rash.
  22. mommyoftwinks
    TY I did not know it had oats. The nutritionist is aware I am sure so I will *try* it. I am VERY itchy; I have horrid hives/rash on my legs (isolated on legs only) and after 2 weeks, it's just not getting better. I'm wondering if it takes time?
  23. mommyoftwinks
    I was given Candibactin, Sustain and MetaFiber after seeing a nutritionist/homeopathic doctor. I am having a hard time with the Sustain and the two powders; they taste gross. Can't add them to water like the container and doc suggest. I was hoping that maybe someone had a suggestion or maybe has taken these and heard of them. TY! UltraClear Sustain...
  24. mommyoftwinks
    Are their espresso drinks (like the pumpkin spice or white chocolate mocha, etc) gluten free?
  25. mommyoftwinks
    I had two glasses of wine last night and ALL day today I have been itchy. It was a Mondavi wine. I'm wondering if this could have caused a flare-up? I've only been gluten-free for about 2 weeks.
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