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TwitchyMcLurcherson

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Everything posted by TwitchyMcLurcherson

  1. TwitchyMcLurcherson
    I have a right hand tremor that doesn't respond anymore to being gluten-free. Have you had an MRI done to check for lesions or a good neuro work-up to make sure there aren't additional problems? I'm trying the b12 route myself, as well as high doses of vitamin D (I have a diagnosed severe deficiency); I'll let you know if it works.
  2. TwitchyMcLurcherson
    My ataxia and associated neuro symptoms have only increased, so being gluten-free hasn't helped them (granted, this is only after being gluten-free again for three months... I had to do a gluten challenge before my endoscopy). I wish it was reversible for me! But perhaps I have another disorder that isn't related (they'll be checking again in a year to see...
  3. TwitchyMcLurcherson

    Hope you are doing well. Merry Christmas, if you happen to log in and see this before then. Well....Merry Christmas even if you log in after Christmas! :D

  4. TwitchyMcLurcherson
    How did it go? I'm trying to find a neurologist through them that also knows celiac.
  5. TwitchyMcLurcherson
    Well, regardless, there's a lot more to a marriage... and life... than a few sentences I wrote in a forum. I didn't mean to come on here looking to rant. Surely some of you have shared kitchens- how do you manage? What specific tips might you have for keeping things safe? Is it possible without owning a dishwasher? We live in a small urban apartment with...
  6. TwitchyMcLurcherson
    Oh, we're in couples' counseling for everything else already. It's not doing a thing.
  7. TwitchyMcLurcherson
    Ha. The irony in this is that my husband IS an Ivy Leaguer (as am I) and the drs, neurologists, and nutritionists that diagnosed me and told me I need to avoid cross-contamination are at Harvard. That's not going to cut it. =/ Currently were screaming at each other because I threw out a couple of boxes of crackers and a loaf of bread. That'll give you some...
  8. TwitchyMcLurcherson
    Some of us simply ARE more sensitive. For me, it's completely neurological. 30 minutes after getting glutened, I have what amounts to a seizure- and this seizure can continue for hours. If I don't get to my anti-convulsants in those first 30 minutes, it's not going to work. Last night it happened in public and I fell down outside of a cafe. No one helped...
  9. TwitchyMcLurcherson
    I have an EXTREME reaction to gluten in any increment. It affects me neurologically, leaving me confused, blurry eyed, tremoring, tic-ing, stuttering, and unable to walk. And yet my husband absolutely REFUSES to go gluten free in the house as well. He also won't keep separate work spaces, pans, dishes, etc. He won't wash dishes separately- or keep them separately...
  10. TwitchyMcLurcherson
    For an example of what this looks like in ONE area of my body, here's a video of me today trying to draw with my right hand (I'm right handed). You should see me try to walk. Open Original Shared Link
  11. TwitchyMcLurcherson
    Have your seizures, atazia, and vision problems gone away, or do they continue sporadically (as indicative of irreversible damage to your cerebellum)? I'm getting worse.
  12. TwitchyMcLurcherson
    The post cut me off before I'd finished. What prognosis is there for neurological gluten reactions? I can't find much. My doctors know little to nothing (so much for Ivy League medical research). I have two children younger than 3. I'm a student. I don't want to end up in a wheelchair or worse. But if that's the reality, I'll accept that. I'd just like...
  13. TwitchyMcLurcherson
    I've been really struggling since mid June with sudden onset gluten neuropathy. It's getting worse. I think I've had symptoms of gluten intolerance for at least ten years, but it was all gastrointestinal before and misdiagnosed until August of this year. One afternoon, I fell asleep exhausted on the couch. When I woke up, I was drooling prolifically and...
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