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Jenny Leigh

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    Female
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    Traditional/Digital art, sewing, sightseeing, evil genius plotting
  • Location
    Louisiana

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About Me

Updated 1/1/11

**********************NEW************************

Gluten free for 4 weeks. Binged on gluten 12/31/10-1/1/11. NO REACTION AT ALL. Perhaps not a gluten problem after all??

12/29/10

LEAP MRT test result. Signet Diagnostics.

Reactive to the following:

- Sodium Metabisulfite

- Sodium Sulfite

- FD&C Green #3

- Mint

- Peach

- Tilapia

Moderately Reactive to the following... worst in italics:

- Fructose, Lecithin, Ibuprophen, Salicylic Acid, Cottage Cheese, Cow's Milk, Cane Sugar, Banana, Mushroom, Green Pepper, Buckwheat, Millet, Barley, Rice, Shrimp, Egg, Lamb, Turkey, Cola Nut, Baker's Yeast, Lentil, Peanut, Cashew, Pecan, Pistachio, Almond, Lima Bean

~~~~~~~~~~~~~~~end new~~~~~~~~~~~~~~

12/14/10

Ordered LEAP MRT test. Expecting blood draw this week and results after Christmas.

Gluten, Nightshade, and Soy free for 2 weeks.

Consuming Casein still.

Down to 106 lbs (that is 39lbs total loss in 1 year).

Regular vestibular exercises seem to help.

Black pepper creating a sore throat, and shrimp giving me D. Things that have never given me a problem before.

Overall feel better, but still not right. Becoming hypothyroid again.

Follow up with GI doc on 12/13/10. Recommends I try gluten free. Willing to do biopsies after a 4 month period of no or little improvement.

11/30/10

Vitamin B12 --> NORMAL

Vitamin D --> LOW NORMAL

TSH --> 5.51 HYPO

11/15/10 Adrenal Testing NEGATIVE

ACTH Stimulation Test

Cortisol Base ACTH -- 20.2 ug/dL (4.0-22.00) time: 8:34

Cortisol 60 Min Post ACTH -- 30.8 ug/dL (no ref range given) time: 10:22

Errors by lab made... redoing test on 12/13/10

I also don't think the doctor gave me all the pages

11/15/10 Analyzer/or Components NEGATIVE

ANA Screen -- 0.94 Units (0.00-0.99)

1.0 and greater is positive

Screens for autoimmune

11/15/10 CBC (Complete Blood Count) NORMAL

WBC -- 4.2 1000/ul (4.0-11.0)

RBC -- 4.67 mill/uL (3.8-5.3)

Hgb -- 13.4 gm/dl (12.0-16.0)

Hct -- 39.5 % (37.0-47.0)

MCV -- 85 fl (80-100)

MCHC -- 34 gm/dl (31.0-37.0)

RDW -- 14 % (12.1-14.9)

Plts -- 230 1000/ul (150-375)

MPV -- 8.7 fl (6.5-12.0)

11/15/10 Automated Diff

Neut% -- 36 (44-81) LOW

Lym% -- 49 (21-47) HIGH

Mono% -- 10 (2-11)

Eosin% -- 3 (0-7)

Baso % -- 2 (0-2)

Neut A -- 1.5 1000/ul (1.5-10)

Lym A -- 2.1 1000/ul (1.3-2.9)

Mon A -- 0.4 1000/ul (0.1-1.0)

Eos A -- 0.1 1000/ul (0.0-0.7)

Basos A -- 0.1 1000/ul (0.0-0.2)

11/15/10 Chemistry Panel NORMAL

Na -- 139 mEq/L (136-145)

K -- 4.1 mEq/L (3.5-5.1)

Cl -- 109 mEq/L (100-109)

CO2 -- 26 mmol/L (22-33)

Gluc -- 87 mg/dL (70-100)

BUN Level -- 17 mg/dL (5-25)

Creatinine Level -- .85 mg/dL (.57-1.25)

Calcm -- 9.8 mg/dL (8.8-10.6)

TotPrt -- 6.8 gm/dl (6.0-8.3)

Alb -- 4.0 gm/dL (0.2-1.2)

Bili T -- 0.5 mg/dL (0.2-1.2)

AlkP -- 47 unit/L (40-150)

AST (SGOT) -- 15 unit/L (10-58)

ALT (SGPT) -- 24 unit/L (5-50)

11/15/10 Immunology/Serology NORMAL

C Reactive Protein -- 1.5 mg/L (0.0-5.0)

11/15/10 Other Cellular Testing NORMAL

Sed Rate -- 5 mm/hr (0-15)

11/15/10 Thyroid Group NORMAL

TSH -- 4.441 mIU/L (0.350-4.940)

Thyroxine Free -- 1.28 ng/dl (0.70-1.48)

HIV Test - Negative

11/4/10 Negative on Celiac blood test

Celiac Serology:

Anti-Gliadin IgG ELISA (AGA IgG) -- 6.9 U/ml ( < 16.3 U/ml)

Anti-Gliadin IgA ELISA (AGA IgA) -- 1.1 U/ml ( < 9.3 U/ml)

Anti-Human Tissue Transflutaminase IgA ELISA (TTG IgA) -- 0.4 U/ml ( < 10.3 U/ml)

Anti-Endomysial IgA IFA (EMA IgA) -- Negative (Negative)

Total Serum IgA by Nephelometry (TOTAL IgA) -- 63 mg/dl ( >13 years to adult: 44-441 mg/dl)

11/4/10 Negative on IBD blood test

IBD Serology:

ASCA IgA ELISA -- 14.3 EU/ml ( < 20.5 EU/ml)

ASCA IgG ELISA -- < 12.0 EU/ml ( < 22.2 EU/ml)

AntyOmpC IgA ELISA -- 7.1 EU/ml ( < 28.8 EU/ml)

Anti-CBir1 ELISA -- 25 EU/ml ( < 34.9 EU/ml)

IBD Specific pANCA...

AutoAntibody ELISA -- < 12.1 EU/ml ( < 18.7 EU/ml)

IFA Perinuclear Pattern -- Not detected (not detected)

DNAse Sensitivity -- Not detected (not detected)

Ultrasound of Abdomen:

Normal liver, kidneys, spleen, gallbladder

Catscan: normal

MRI: normal

ENG: diagnosis Vestibulopathy

-Treatment: Vestibular Rehab

Awaiting test results on the following:

Gastro doc:

Stool Sample

Internest:

None

GP:

Vitamin/Mineral Panel

All current diagnosis:

By doctor: Psoriasis (now dormant), Hypothyroidism (now dormant), Vitamin D deficiency, ADHD (inattentive type), Vestibulapathy

By yours truly: Low blood sugar, lactose intolerance, anxiety, depression, insomnia

  1. I've started to feel a bit down today... tired, mild headache, grumpy, jumpy vision. It isn't a strong enough reaction yet for me to think it is truly gluten (yet). I'll continue with the gluten challenge until Tuesday night, when my diet with the dietitian begins. I'll speak to her about it. Yes, the MRT will most certainly NOT diagnosis anyone with...
  2. I've decided to start a new thread based on my LEAP MRT test results. You can see it here: I'm beginning to think I *might* not be gluten intolerant due to no reaction from a gluten binge after 4 weeks of being completely gluten free... and yes... I'm certain I guarded against all cross contamination even through the holidays. I wonder if 4 weeks was...
  3. I thought I would start a new topic, as my original thread is getting very long winded and this topic possibly deserves it. Here is my original thread if you would like to view my story, undiagnosed symptoms, and many doctor failures: I will make one more post on that thread leaving a link to this one in case someone needs it to follow along. ...
  4. Hi Sarah! Thank you for your reply. The newest developments aren't terribly exciting. I've canceled my adrenal and thyroid tests, because I feel too "good". I want my adrenals tested when I'm doing bad. All my vitamins came back normal. Whoopdedoo. I've been gluten free for a few weeks now and feel pretty good in comparison to the usual. I've dropped...
  5. How are things going? Any more answers?

  6. Also, I've read a clinical guide to thyroid disease, "Stop the Thyroid Madness", and two gluten books... all of this is making me want to scream at doctors...
  7. Okay... more test results in. The new stuff is down below and everything is on my profile page. They tested my adrenals and thyroids. Everything came out negative of course. There was some errors made by the lab, so I'm getting it redone on 12/13/10 as well as a more thorough screening of my thyroid (TSH is 4.44 per latest test). The only blip on the radar...
  8. Frustrated beyond belief

  9. Okay, got some results. Celiac blood panels are negative. IBD panel is negative. Ultrasound is normal. Follow up with GI doc on 12/13/10 Here are the numbers... reference range in (xxx) Celiac Serology: Anti-Gliadin IgG ELISA (AGA IgG) -- 6.9 U/ml ( < 16.3 U/ml) Anti-Gliadin IgA ELISA (AGA IgA) -- 1.1 U/ml ( < 9.3 U/ml) Anti-Human Tissue...
  10. Hey everyone! Just an update on my continuing waiting game... still waiting on Celiac & IBD blood tests. As well as ultrasound on the liver/gallbladder. Should be talking to that doctor in about a week or two. A *new* development... I had my first internal medicine dr appt today, and she is currently leaning towards some sort of hypoadrenal disorder...
  11. Jasondub, Honestly it is like you are reading my mind. Over the past week I've pretty much convinced myself I need to go on an elimination diet because I'm also concerned about yeast, casein, fructose, and nightshades. However, I do not want to do it without a doctor's guidance and blessing. As of right now I have no results to show. I had blood drawn...
  12. Well that is certainly a relief! I've swung from D to C in one day flat, and other than that feel temporarily cured. I know it is all a ruse and something will make me sick again eventually until I get this fixed.
  13. When on a gluten filled diet, did you ever have symptoms that were episodic? I have a few, rather minor, but annoying problems when I have a stretch of good days... and then something will set me off. My last relapse/attack was due to eating 2 Chili's mini big mouth bites. I got extremely nauseated and then woke up the next day with vestibular symptoms, and...
  14. I'm comfortable sharing any and all. I think I'm going to ask for copies of *everything* from my GI doctor this time... We get to wait a little while though. Also toying with the idea of genetic testing if he pushes back on endoscopy (or if insurance doesn't cover it).
  15. Thank you guys for your encouragement! I went to the GI doctor on Monday, and he has ordered blood tests for Celiac and IBD. Also had an ultrasound of my liver and gallbladder... and stool sample (that was not fun...)probably to check for colitis, parasites, and what not. He said that Celiac was a reasonable judgement call to make, but that it is "really...
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