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dfish

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Everything posted by dfish

  1. dfish

    ARCHIVED Is This Normal?

    dfish replied to dfish's topic in Coping with Celiac Disease

    Thank you all for your responses. I'm not sure about the soy stuff. I have recently had extensive allergy testing, both IgE and IgG testing (RAST, Great Smokies, regular skin prick testing, Enterolab, etc) and the only things that I showed a huge response to was dairy (off the charts kind of stuff). Even my gluten intolerance was low and almost did not...
  2. dfish
    After testing several weeks ago, my tests came back showing a huge intolerance to casein and all dairy products, a moderate intolerance to gluten, and no full blown celiac disease, just the intolerances. Well, I stopped eating all dairy products and gluten products, have a gluten free house, etc, and I've gotten worse, not better. Since I stopped eating...
  3. dfish
    Just wanted to throw out some suggestions for folks struggling with getting a diagnosis or information. After a two year battle of trying to figure out what the heck is going on with me, I think I'm finally getting the help I need and would like to share it with others. I contacted Great Smokies Laboratories (you can google them and get their website, I...
  4. dfish
    Thank you for the nice response! It has been a huge struggle for me to try to figure out what could "kill" me soon if I eat and what's going to "kill" me down the road. I've done so much research on the topic, I seriously thought about going back to school to become an allergist! Might make all this time and effort worth something Anyway, I'm not sure...
  5. dfish
    There is some confusion among professionals about what is an "allergy". They all agree that "true" food allergies are those that are mediated by IgE antibodies in our bodies. Those antibodies are the types that cause an immediate, histamine response by the body. Traditional "allergy" testing, such as skin prick testing, tests for true IgE mediated allergies...
  6. dfish
    Thank you so much for all of your replies. This is just so horrible and confusing. As it stands now, I'm allergic to wheat, casein, eggs, celery, corn, carrots, chicken, fish, shellfish, legumes, melons, citrus, bananas, all tree nuts, hmmm, what else? The list is huge and ridiculous! I guess what I am having such a problem with is one, figuring out what...
  7. dfish
    Okay, I am needing some guidance here. I'm thoroughly confused. I am gluten sensitive, tested positive to wheat and a whole host of other things in a traditional skin test (IgE mediated allergies); I have figured out the difference between IgE mediated and IgG/IgA mediated allergies and have come to realize that I have a bit of both. I'm avoiding the foods...
  8. dfish
    I am needing some help figuring out all of my test results and am hoping that someone can help. Here is what has been determined so far: Antiendomysial antibodies: negative IgG: positive IgA: negative Enterlab: Slightly positive to gluten, no intestinal damage, no celiac gene (other "gluten sensitive markers") IgE skin prick tests: positive for...
  9. dfish
    I can so much understand what everyone is saying here. I have not gone a year and a half without calling in sick at least one time per week. I went from having over 300 hours of sick leave when all this started to 4 currently. I am lucky in a lot of respects because I have a job that allows me to "flex" time, so when I am feeling good I work weekends and...
  10. dfish
    Thank you for the ideas and kind words! It's funny because when I look at the list of things I can't eat, in the whole world of food and cooking, I can honestly see that it's not that much compared to what I can eat, and I've tried to keep that positive attitude. I also suffer from hyperinsulinemia, so I have to have protein with every meal, but when I...
  11. dfish
    I need to vent. Hope that's okay. Was diagnosed with celiac disease about a year ago. After doing some research, didn't trust the doctor who diagnosed me. Did Enterolab, which stated that I showed evidence of "gluten sensitivity" but no intestinal damage. Took that to my doctor. They said "not full blown celiac, should still avoid wheat and gluten"...
  12. dfish
    Hi folks! I recently had my diagnosis of celiac confirmed through Enterolabs; prior to that, I was eating gluten for a gluten challenge that was scheduled with my doctor. Since getting the Enterolab results back, however, I have ceased the gluten challenge and stopped eating gluten. I have also stopped eating casein. However, I am having some major problems...
  13. dfish
    Burdee: I have noticed more of a reaction from soy than from dairy in the past, so I am extremely interested in finding out what kinds of things you eat, including mainstream products, that do not contain gluten, soy, or casein. This is the diet that I think I need. I've been doing research for hours since I got my results back and am finding that...
  14. dfish
    Yay! I finally got my Enterolab results! But I have a couple of questions about them and am hoping someone here can help. Here are my results: Gluten Sensitivity Stool Test Fecal Antigliadin IgA 48 Units (Normal Range <10 Units) Stool Test for Autoimmune Reaction to Tissue Transglutaminase Fecal Antitissue Transglutaminase IgA 33 Units...
  15. dfish
    Throwing in my two cents . . . if Joe C was on Prednisone his whole life, it wouldn't surprise me in the slightest if he had to take "60 pills" a day. I'm not sure if anyone else who has taken it has had the same experiences as most people I know, but Prednisone is one nasty, nasty drug. I got prescribed it when I was first diagnosed for celiac and was...
  16. dfish
    Thanks for the response, Barbara! I guess I am just so anxious to get my results because I do have a lot of faith in Enterolab from what everyone has said on this post that, when I get the results, I'm going to take them as gospel and quit messing around with all of these doctors! I feel like I'm waiting for (and they're overdue!) the answers that are going...
  17. dfish
    Okay, maybe I'm just being impatient and bratty, but I am finding myself a bit disgruntled with Enterolab. The paperwork that they give you says that they process your specimens asap and that results are usually received within two weeks, but to please allow three weeks for the results due to their high volume of tests. I can respect that. Their paperwork...
  18. dfish
    First of all, I want to say thanks to everyone who responded to my question about the testing kits. Once again, you are all the experts, since everyone said they think I got the second test kit in error and lo and behold, when Enterolab got back to me, they said the exact same thing! This may seem kind of silly because, well, common sense would say...
  19. dfish
    Hi all! Thought you might be able to help me; I emailed Enterolab and did not receive any response to my question, so I figured I would post it here since so many of you have worked with them. I decided to do Enterolab testing and received my testing materials. I sent away for the Gluten Sensitivity Complete Panel that is including a Milk Sensitivity Test...
  20. dfish
    Hello all! I'm just hoping for some suggestions because, well, I'm totally frustrated. I've been in the process of a gluten challenge for more testing because my other test results were inconclusive, but I decided to stop the challenge and just go for some Enterolab testing. I haven't felt any better or any worse, honestly, while eating gluten. I have...
  21. dfish
    How does someone do a low carb diet if they can't eat eggs or dairy or chicken? I'm currently experimenting with my diet (partially because I'm in the middle of a fabulous gluten challenge) and am finding myself totally confused. I am borderline diabetic, so lower glycemic index foods are great for me and I've examined the South Beach Diet and Atkins and...
  22. dfish
    I was put on Actos about a year ago for pre-diabetes and I gained 14 pounds in a month. You may want to get back in touch with your doctor. I don't want to scare you, but Actos is very hard on a person's liver and the information I received from my doctor was to contact her immediately if I noticed a great deal of weight gain rapidly because it could be...
  23. dfish
    Richard: I wasn't actually feeling much better off of the gluten (which is part of the reason why I went back to gastro doctor). I was still having pretty bad diarrhea and stomach pains, and began having major heartburn, which is why I went to the GI doctor (I wasn't able to sleep because of the severity of the heartburn). The tests I had done previously...
  24. dfish
    Hello! I was diagnosed with celiac disease 14 months ago after blood work and have not been very good about following a gluten free diet until recently (within the last month or so). I went to see a gastro because of some other concerns (he is not who originally diagnosed me, that was a general practitioner) and he's concerned about the results of my blood...
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