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**bricelbehcetlymphoma

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Everything posted by **bricelbehcetlymphoma

  1. Ravenwoodglass, I had symptoms of Behcet's for 20 years. it was mentioned to me several times and docs always said it was too rare. My immunologist tested me for it without me knowing what I was being tested for and I never mentioned most of the key symptoms to her. I have the genetic marker for it and most of the symptoms. I was gluten free before...
  2. thanks very much for your prayers! I don't think they are trying to cause frustrating. It is just the season when a lot of things are closed and I think they are waiting for me to finish testing, etc., I wish I could have thought of all these questions at the time, but it was the last thing in the world I expected to hear.
  3. I was diagnosed with Celiac (by genetic testing) in July and immediately went on the diet in a big way. I was diagnosed with Behcet Disease a couple of months ago. Gastro doc had me go back on gluten for a few weeks and then did an upper endoscopy. Doc said I was inflamed all the way through my body, as far as endoscopy went and they did a lot of biopsies...
  4. First diagnosed with Celiac then Behcet Disease. Now doctor thinks I may have lymphoma. I was wondering if possibly what the doc perceives to be lymphoma could actually be a manifestation of Behcet Disease?
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