CeliaCupCake
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by CeliaCupCake
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Posterboy, Many apologies for my delay in replying. I am just so pushed for time. Thanks so much for all that information. As I said, I have already been taking high dose B Complex for many years. I also purchased, as you suggested, Betaine HCI (this also has pepsin) but haven’t had any yet as there is a warning saying not to take if peptic u...
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Thank you, Scott. That sounds like sensible advice and I will of course consult with my doc before I make any drastic changes.
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Posterboy, Yes, I read the article, and thanks for highlighting the key points for me. I have now read all you’ve sent and am convinced enough to at least try BetaineHCL. But do I go against my doctor’s advice and stop taking antacids as well? She stressed I should take them to prevent further oesophagus damage, though agrees that I did the right thi...
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Posterboy, I really appreciate your help and have at the least for now (as I'm very busy and trying to find the time to research all you've given me) done the baking soda test and did not burp at all (but then I rarely ever do). I then looked up symptoms of low stomach acid https://www.lispine.com/blog/10-telling-signs-you-could-have-low-stomach-acid...
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Posterboy, Thanks very much for your time and effort which is most helpful. I will certainly give some of your suggestions as a try. I am confused though as to why I might need BetaineHCL stomach acid replacement therapy when my problem is acid reflux (i.e. too much acid)? I have a hiatus hernia and ulcerated oesophagus that causes the acid reflux...
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Unfortunately, after several weeks off PPI and using antacids instead, all my symptoms have returned, but now I also have the added GERD symptoms. Does anyone know if antacids have similar side effects as PPI? Not that the antacids are very effective for me anyway. I've googled to find there is also H2 Receptor Blockers. Would they be as damaging...
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Gosh, I'm so glad I've decided to stop taking PPI. Thanks so much, Posterboy. They are very helpful links.
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Knitty KItty, I'd thank to thank you especially for the PPI warning. Since reducing the dose to the barest minimum over the past 5-7 days, I have been considerably better - the first time in over a year I've been well for this long. Admittedly, I've had some days over the years where I'm not so bad, but not for this long whilst eating normally (not intermittent...
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I'm sure you're right, Knitty Kitty, but I'm probably okay for thiamine as I have taken high dose B Complex for many years.
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Yes, I will definitely ask him that question. So you have a hiatus hernia as well as celiac too? I’m not overweight and don’t suffer from constipation so I guess mine is down to age. I can understand you not tolerating the pre-surgery manometry test. I had a look on youtube and it doesn’t look pleasant!
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Your links are helpful and helping me realise that I need to think twice about my PPI drug. Here's another article (there are so many pointing out the dangers to gut health) https://www.reuters.com/article/us-health-intestines-stomach-drugs-idUSKBN0U12HM20151218 . In fact, my hiatus hernia was only spotted in the second gastroscopy after being on omeprazole...
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Gosh, that's quite a lot. Thanks so much. Can't wait to read them at the first opportunity, and will let you know.
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Kate333, Many thanks for your helpful suggestions. Because I have always been severely symptomatic despite being 100% gluten-free, I have never waned from a gluten-free diet. However, maybe an updated TTG-IGA test would be interesting. I am definitely going to see the GI consultant regarding my MRI scans. You are absolutely correct that the...
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Posterboy, Many thanks for your very interesting links. "I got lost in the forest of data….for years…going around in circles…or so it seemed at the time…" I can totally relate to that! "I would look into Low/NO Stomach Acid, SIBO and eliminating Dairy if you haven't already." Thanks. Dairy doesn’t seem to bother me at all, and I have ha...
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Knitty kitty, Considering the lack of response here, apart from your kind replies, I'm wondering if you know of another thread that relates to my topic question, please? I did do a search without much success. Thanks again.
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I agree with you about being off supplements before blood tests, but when I suggested this to the GI coeliac specialist, he said not to bother coming off them. I did think that was a bit stupid, but did as I was told. I had no idea that probiotics can encourage bacteria to grow in the small intestine resulting in SIBO. I always understood them to...
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Thank you, Knitty Kitty. Yes, I get my bloods checked every year and they've always been fine, though that's probably because I take vitamin and mineral supplements (including B complex), as well as probiotics.
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I was biopsy diagnosed with coeliac over ten years ago and have been 100% gluten-free ever since. I was Grade 3 on the Marsh scale (that's high) and 4 months on gluten-free diet, my villi had returned to normal. However, despite the villi improvement, my symptoms (diarrhoea, gas, bloating, frequent toilet visits of up to 12 times per day) persists ...
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Thank you, Lucia. Thanks Skylark for the very helpful SCD lists and scdrecipe.com links, and yes, I’d prefer to follow the SCD than the GAPS. I think you need to be a bit of a domestic goddess to follow the GAPS, and the kitchen’s the last place I want to be! I do hope the Mayo find more conclusive answers for you. I hate cavalier dec...
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So sorry you
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I'm sorry things are so bad, TTNOGluten, despite being gluten-free for six months and now, like myself, finally having normal celiac biopsies. Maybe you should also try the Specific Carbohydrate Diet (starch-free) diet, as advised above. I have now tried it for almost a week and for the first time in a couple of years have seen a marked improvement. To...
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Certainly doesn’t have that affect on me – quite the contrary! I’m not too happy about resorting to a drug either. I’ve never taken anti-depressants in my life before but I’ll give anything a try that a leading celiac specialist prescribes, if only to say I tried it and it doesn’t work. Far from it. I have gone to extreme lengths to ensure I do not to...
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Thanks so much for everyone
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I hope this isn't a stupid question but are you talking about a long-term or even lifelong diet there? It can't just be temporary until my gut heals, can it, because my gut has already healed (and I'm no better). Also, is it just veg that has to be non-starchy, or fruit too? I ask because I eat lots of bananas (which are starchy).
