the57motz

Well, I've decided to go gluten free irregardless of the test results. the genetic tests came back negative but I'm going to get a copy of them monday (or tuesday) from the doctor's along with my original blood test results to find out exactly what was tested etc. I've been reading this forum (fanTASTIC info thank you!) and never knew that someone...

If it were just me, I probably would. But since It's hereditary I've decided to at least get the gene blood test, and maybe try the testing once more time but make sure I'm glutenized clear up to the day of the test. (unlike last time) If I find out that I have the gene, I'm going to have my brother and his ex wife test my niece for the gene also. ...

If what I had was dermititis heptiformis, I feel for your cousin lauren- it is just horrible!!! I used to scratch so bad, my skin would blister and bleed. Where is yours cousin's excema? (if that isn't too personal)

yes, they did a biopsy but as I said I'd been better than 10 years plus eating minimal bread, gluten etc and had been symptom free for a long time until I moved back closer to my bread loving family., and before the biopsy was done I went gluten free again for at least a week and a half before the endoscopy and biopsy. I had been thinking about going...

the doctor I went to was a gastroenterologist btw.... forgot to mention that. and she also did a full blood work, checked my liver, my thyroid my calcium, fat & cholesterol levels- I was tested as absorbing nutritition normally. But (and believe me I'd be happy if I did not have this disease) I'd spend better than 10 years + eating almost no...

I would like to post my history here (geez hope you don't mind?) I would love to see what people think here. I was diagnosed with irritable bowel disease in my teens, pretty much by default because they found nothing else. I had what was called atopic excema for years (god it was HORRIBLE woke me up at night constantly i'd wake up just scratching like...

Thanks everyone- and best of luck to anyone that is about to be tested, or start the gluten-free diet. I believe that I'm actually going to get the capsule endoscopy. The doctor asked me if i was going to be gluten free before the test and i said yes. I'm guessing because she asked me first, that she will make sure that the pathologist gears his results...

Hello I've lurked on your board a few weeks, so I'm new here. Celiac Disease runs in my family- My mom had it from childhood, and generally only avoided gluten when she got sick even then would eat it anyway. In the end years of her life she had osteoporosis (lost 5 in in height) scoliosis and severe degenerative arthritis of the spine. the osteoporosis...