Lyddie
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Everything posted by Lyddie
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ARCHIVED Hla Types For Celiac
Lyddie posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My daughter (who has type 1 diabetes) has HLA-DR types DRB1*04, DRB4*01 and DQB1*03. Does anyone know if any of these are associated with celiac? My other daughter has DRB1*03, DRB1*07, DRB3*01, DRB4*01, DQB1*02 and DQB1*03. I have the same ones as my first daughter plus DRB1*07. Any geneticists out there who could tell me what these mean in terms... -
ARCHIVED Biopsy Timing: Need More Weeks On Gluten?
Lyddie replied to Lyddie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I did reschedule the biopsy for April 4th, with a heavy heart. My daughter looks all swolen and her tummy looks distended and hurts. I feel badly that she might have to go this long on gluten. I also know ther is no guarantee that the biopsy won't miss the patches of damage, if they are there. There is no way she could ever do the full gluten challenge... -
ARCHIVED Biopsy Timing: Need More Weeks On Gluten?
Lyddie replied to Lyddie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
She had her blood drawn today, so she has been eating a bagel a day for 4 days. She was gluten-free for 10 days before that, and has avoided gluten w/sporadic ingestion f it for about 6 months. The blood test was the anti-endomysial ab, and IGA. Perhaps he blood tests will also be invalid, but they are easier to redo than a biopsy! I think I will call... -
ARCHIVED Biopsy Timing: Need More Weeks On Gluten?
Lyddie replied to Lyddie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was just talking with my daughter and want to phrase this question a little differently. For the past 6 months, she has frequently avoided gluten on many days, just because bread, pasta etc. obviously hurt her. So for many days, she might get by w/just apples, yogurt and eggs, for instance. When she did eat wheat-containing foods, which might have been... -
ARCHIVED Biopsy Timing: Need More Weeks On Gluten?
Lyddie posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My 14 year-old daughter saw a GI specialist today, who did some blood tests and also scheduled an endoscopy for Monday, in 4 days. My daughter was gluten-free for a couple of weeks in early March, with a lot of improvement, and then has been back on for the past 4 days. Prior to our March experiment with her being gluten-free, she avoided bread, pasta...