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minivanmama0300

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by minivanmama0300

  1. minivanmama0300
    Well, my dd came in under 10 on all gluten sensitivity panels, so yes we have had a negative.
  2. minivanmama0300
    Thats the problem. There was NO INTERPRETATION at all!!! Nothing! I emailed Enterolab and have had no response. The whole thing just pisses me off. There was a small section detailing how to read the results, but not an actual interpretaion like I have seen on others reports posted here. Well, she was having really bad GI symptoms, and what I thought...
  3. minivanmama0300
    PLEASE SOMEONE!! My dd's tests from enterolab came back negative, but she does have the 201 and the 503 gene. The 201 as I understand is the main celiac gene? Correct me if I am wrong. What does this mean? Should she be gluten-free even if she is no longer having any symptoms or problems, and if she is negative everywhere else? What should we do next?...
  4. minivanmama0300
    I am so amazed! I received my dd's Enterolab results in the email just now. Here they are: Gluten Sensitivity Stool Test Fecal Antigliadin IgA 8 Units (Normal Range <10 Units) Stool Test for Autoimmune Reaction to Tissue Transglutaminase Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units) Stool Test for Cow...
  5. minivanmama0300
    I don't have any experiance or anything to add, but could you tell me how long you waited for your results? I shipped my dd's sample back a week ago today, and I know they say to wait three weeks, but I am sooooo impatiet!! How long till you got the results?
  6. minivanmama0300
    Just curious, are these family practice type drs, or GI's? I suspect that my dd has celiac, and am awaiting results via enterolab after getting tired of the wait. I want to get myself tested too, but the expense of enterolab isn't an option. Can I just go to my family Dr. and get these tests run, or will he want to ship me off? Jess
  7. minivanmama0300
    Just chiming in with a hug. My dd is not diagnosed yet, but when we did the gluten free diet and found relief, it was bittersweet. I was happy that her suffering was gone, but on the other hand the realization of what that might mean was overwhelming. I had quite a few crying days as I accidently gluted her, and as I realized how difficult this would be....
  8. minivanmama0300
    WOW!!!!! Thanks for posting that. I guess I assumed that a pill or treatment would come from overseas since it is more widely understood there. I would bet that it would be at least 10-15 years after it is approved there before we would have approval for it here. Still, that is great news. Jess
  9. minivanmama0300
    Enterolab gives you the codes to submit to insurance after you pay. You have to order with a credit card first, so it would be a matter of getting it reimbursed. If you want I can give you those codes if you want to call your insurance and try to get it covered. My insurance doesn't cover it, but it count toward our out of pocket I guess, which is something...
  10. minivanmama0300
    Do you think that it has anything to do with the fact that for it to be truly called Celiac there has to be damage, and they have to see it? From my reading it seems like it is just "gluten sensitivity" until the gene is activated and damage starts. That is what concerns me, I don't WANT to wait until a lot of damage is done, just to get a label I guess....
  11. minivanmama0300
    I am in emporia. Small world, huh? Dh interviewed for a job in Salina last year but we decided against it. We could have been neighbors, lol. Two of the parents in our support group are familiar with childrens mercy, and neither had good things to say about the doctors either. Mainly bedside manner. We are sending back our enterolab test samples today...
  12. minivanmama0300
    Thanks Jessica. That gives me something else to think about in this process. I hope maybe the test will come back positive enough that they will not get hung up with a negitive blood test. That is my big worry with her young age, that a blood test will be a false negitive. I do read silly yaks, I promise to get back on soon! Sorry that you can't make...
  13. minivanmama0300
    Jessica, I don't know if you remember me, I am in your town and was on silly yaks until I forgot my password, lol. I have a 2 year old dd, and made it to the support meeting last week!! Since you are familiar with our school district (I assume, you said something about being a teacher) What will I need when my dd goes to school? We have chosen to go...
  14. minivanmama0300
    Wow, thanks! That makes me feel better. I guess it seems like the medical community in general is so behind the times in detecting celiac and related issues. I am really surprised to read that most people "diagnose" themselves and bring it to their Dr, not the other way around. I hope that you are getting some relief from the colitis, I don't know anything...
  15. minivanmama0300
    I am just wondering if anyone has any thoughts/facts. I have the Enterolab kit here, waiting for dd's stool sample. All I have found in my searches are positive things, mainly coming from enterolab themselves. So far they seem legit and everything, but my question is, if this way of testing is more accurate, why isn't the medical community using it? I have...
  16. minivanmama0300
    I just wanted to say hi and lend some support. Was it childrens mercy that you went to in KC? We have an appointment there with Dr Hodge in a few weeks, and I am not sure I want to keep it. I have heard nothing but horror stories of people trying to get a diagnosis. We ordered the Enterolab testing kit, and I hope to get some answers there. I really don't...
  17. minivanmama0300
    Thank you so much for your thoughts! You know, last night at our local celiac support group meeting a man was mentioning that his symptoms were cyclical. Interesting! Have you had the testing from enterolab? One thing that attracted me was that it doesn't matter if you are fully on gluten for the test to be accurate. DD is eating a lot less gluten (she won...
  18. minivanmama0300
    and I would also love to hear anyone experiances with enterolab!
  19. minivanmama0300
    Hi all! Several months ago I started trying to figure out what was wrong with my almost 2 year old dd. She had several of the symptoms of Celiac/gluten intolerance. To test my theory I took her off gluten and to my delight she had her first solid BM in months, practically ever! Then her horrible rashes cleared up, the bloated belly went away, she became...
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