Jump to content

JenC

Advanced Members
 View Profile  See their activity

  • Posts

    28

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by JenC

  1. JenC
    Thanks! We ended up in a boardwalk balcony room on Royal Caribbean.
  2. JenC
    We are planning a cruise in September and cannot decide between Royal Caribbean (for its onboard activities) and Carnival (cheaper therefore would book balcony rooms). I'm wondering which is easier for gluten-free travel? Both DD and myself are gluten-free, and I especially want her to have fun!
  3. JenC
    She is definitely casein sensitive, so she is off gluten, dairy and soy, and has been for six days. She is still complaining of tummy aches and occasionally of feeling like she needs to vomit after she eats. My guess is that we did a number on her stomach.
  4. JenC
    So, we took my daughter (age 3) off gluten in December and saw a positive response. Of course, since all of her tests showed no problem with gluten we were kind of wondering if that's really what it was that had helped her. Fast forward to a couple weeks ago: she did a head dive into the coffee table, sustained deep cut on her face and ended up with 8 stitches...
  5. JenC
    Well, no apparent CC this time.
  6. JenC
    My husband took our daughter to the park. Afterward he stopped to get her a treat. Rather than get her something from the several options I listed, he got her a McDonald's strawberry sundae with nuts. Though their site says they're gluten-free, what are the chances of cross-contamination in this case?
  7. JenC
    I can see wanting to rule out everything else before jumping to gluten. I went to him hoping he'd want to cover all the bases. It seems like he isn't concerned enough to think there is even a problem. Great point about bringing respected studies with us next time to reference! I'm concerned that aside from the misinformation he spouted off, he discounted...
  8. JenC
    Why didn't I think to ask for citations and studies? Oh well, I'm not going back to him. I knew within a few minutes he was useless. He kept hearing my comments/questions, then turning away from me and speaking only to my husband. Nice.
  9. JenC
    Ah, but you are forgetting that this "doctor" doesn't believe we should remove gluten from her diet. Excellent point, though.
  10. JenC
    Yeah, that makes sense to me. Why would someone who tolerates gluten fine feel ill after going back on it? Seems like someone who has no issues could eat it or not, with no change in body.
  11. JenC
    Here are some of the gems I heard from my daughter's GI today. True or False? Links to current research (for my husband) are much appreciated! ANYONE who removes gluten from their diet and then later reintroduces it will feel ill and react to it. This does not mean they are Celiac or NCGI. If someone tests negative for the two main Celiac genes, no...
  12. JenC
    So, went to GI today with DD's list of concerns. crappy sleep (wakes every 20 min-2 hrs all night long) stomach pain extremely irregular stool in frequency, consistency, color, smell, sometimes floats a bit lots of undigested food in stool gassy tooth decay to the extent she had four removed drop in percentiles (from high 90's to BMI being so low...
  13. JenC
    Thanks for this. I've decided I need to just suck it up and be gluten-free, as regardless of whether it is celiac, I have to be diligent. I would be elated if my emotional eating issues eased as a result of being gluten-free!
  14. JenC
    Thanks. I have serious anxiety issues, but if I can convince a doctor to order one I'll just force myself to do it. I really want to know.
  15. JenC
    Good point.
  16. JenC
    Thanks. I guess I just thought since I don't have either of the two genes most commonly associated, I was unlikely to have it. Maybe I need the biopsy. I'm terrified of it.
  17. JenC
    I think I was really hoping that the long term consequences are the same for the two, because it'd be easier for me (an emotional eater) to stick with gluten-free if the consequences for not doing so were so obviously dire. Lol.
  18. JenC
    No endoscopy. I'm a wuss. My MD didn't think I had Celiac, but he does think gluten is poison and I should avoid it. Genes... I can't find where I put my paperwork, but it was the two on the typical celiac gene panel.
  19. JenC
    I would have sworn I have Celiac Disease based on my symptoms, but my genetic testing and antibodies come back negative. To be honest, I was hoping that I did have it, because it would be easier for me to stay gluten-free if I had a disease. (I know, I'm really messed up.) I do have Hashimoto's, I am now insulin resistant and my adrenal system is really...
  20. JenC
    Thanks for the replies, everyone. My daughter and I start our gluten-free trial Friday. I'm hopeful that my health will improve, as well as hers. Considering my Hashimoto's and the fact that I need to be gluten-free for that alone, it would be fantastic if some of my other issues are remedied, too, just for extra motivation.
  21. JenC
    I recently had the genetic celiac test and the blood panel done, both of which came back negative. I'm fairly certain I'm at least gluten intolerant, though, and because of that and my autoimmune disease (Hashimoto's) I'm going to do a 3 month trial. My question is, I have so many of the symptoms I have seen associated with celiac. Brain fog, depression,...
  22. JenC
    Is the IgG testing accurate for kids under 5? The more I look the more I think our chances weren't that great of getting a diagnosis in the first place. I think I've got my husband on board to do 3 month trial.
  23. JenC
    That's what I thought about the IGA deficiency. So there is no other labwork or even stool testing that would tell us anything? We aren't interested in doing a biopsy at this point, as she already went under general anesthesia earlier this year for dental work (due to the gluten problems, we suspect). Yes, she shows many signs of celiac, but my husband is...
  24. JenC
    Daughter's new ped said he'd ordered full celiac panel including the genetic testing. Not so much. Here are the results. Can anyone help? Tissue Transglutaminase Antibody, IGA Less than 3 Less than 5 = Negative 5-8 = Equivocal Greater than 8 = Positive Immunoglobulin A 17 (out of range) 24-121 is the range Gliadin Antibody, IGA...
  25. JenC
    I just realized that DD hasn't grown in the past four months at least, maybe longer. She was born in over the 80th % for height and weight, but is below 15% now. She is allergic to soy and dairy. She has had terrible dental decay, resulting in having to have the top four front teeth pulled. She has always slept terribly. Worse when she consumes dairy or soy...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.