SpiralArrow
-
Posts
17 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by SpiralArrow
-
I'm sorry I haven't replied back in such a long time. I was actually hoping that I would have all of my "mystery test results" back by now before I replied here. But weeks later and most of them are still a mystery! All I know at this point is I definitely don't have Crohn's or cystic fibrosis, and I have a weak positive on an ANA test, and that my IgG is...
-
Hello everyone, I'll apologise now for the length of this post. Last week I finally got around to seeing a GI and a dietitian and both were useless. The GI insisted quite rudely that because I suffer from constipation rather than diarrhea that this means I don't have Celiac. He mocked any examples I gave him of reactions to certain foods (one for example...
-
Thanks T.H, I understand. But does that really mean that something labeled "gluten free" that includes dextrose or glucose syrup that could be from wheat in the UK? Looks like I'm going to have to harrass some companies if that is the case because that could be why I haven't been seeing as much progress in the last couple of weeks. About a week ago I tried...
-
Thanks for the replies everyone! Whether the problems are CC or an ingredient I'll definitely cut out the Mcflurries now, I can live without them for better health. I'm enjoying healthier snacks now anyway. I know it's been a bit of a risk to think they were okay, I was hoping they were okay more due to wishing I could join in with the household when they...
-
Hello all. I'm sorry if this overlaps with intolerances to other foods or other boards, if I've posted this in the wrong section feel free to move it mods! I'm currently undergoing diagnosis for celiac and other food intolerances. I initially had a negative blood test but my reactions to gluten/wheat have become so severe that I can't do the gluten...
-
ARCHIVED Do You Find You Are More Sensitive The Longer You Are Luten Free?
SpiralArrow replied to HaileyRay812's topic in Coping with Celiac Disease
I've definitely experienced this recently. Before I realized it could be gluten that was bothering me, I had problems like severe insomnia, constipation, bloating, constant brain fog and lightheadedness, higher anxiety, etc. These things are bad, but after having doctors tell me there was nothing wrong I was beginning to just accept this as something to expect... -
Don't worry, I did indeed check beforehand. It's been a few days now and the pain has eased off a lot and I can eat food again. I'm just dealing with feeling a bit weak and fragile. Unless my specialist finds anything else in the future, I'm going to assume that this was an example of one of my "bad" reactions to gluten! At least I learnt my lesson, now I...
-
That's the thing, my doctor still refuses to say the words "it does sound like gluten", even though I have given her a lot of evidence now that says otherwise. She definitely thinks my problems are caused by something in my diet, but seemed keen to blame eggs. Even though I know (at least for now) that eggs don't cause me any problems. You're all so...
-
Thanks for the replies everyone. I'm a bit of a hypochondriac and having other's input tends to stop me from fearing the worst. The pain hasn't subsided, but I did get my appetite back yesterday and I stopped feeling sick. Problem is even the gluten-free food is now causing the pain to intensify. I just came back from my doctor who checked my stomach...
-
Hello everyone. Long story short, I have to wait until september to see a GI and in the meantime I have been unsure about whether to keep eating gluten for further testing, or to start gluten free immedietly. I know I've risked ruining my testing by doing this, but I've been trying gluten free for about 3-4 weeks, though I would call it "gluten-light" because...
-
ARCHIVED Negative Bloods - Miserable And Don't Know What To Do
SpiralArrow replied to Sika's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi there Sika. I'm in a similar position to you, I recently had my first blood testing and it came back negative. I explained to my doctor that despite that, I still seem to have celiac-like symptoms and that they seem to improve somewhat eating gluten free. So my doctor has decided to book me in to see a GI for "some specialist input" because she admitted... -
ARCHIVED What Do I Do Now?
SpiralArrow replied to SpiralArrow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's good to know. My specialist is booked but the earliest appointment that was available is September! Now I face going gluten free and ruining the testing, or glutening myself and feeling horrible for nearly two months. I know I should be eating gluten right now, but I carried on trying gluten free for the past week because I keep feeling like I need... -
ARCHIVED What Do I Do Now?
SpiralArrow replied to SpiralArrow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks again for the responses! I just got back from my GP and I did get my results, but I'm frustrated. It just says Anti-tissue Transglutaminase NEG. Is that it? I thought there were more parts to the test than one straight result. Maybe I should ask to have the dna test? Unfortunately I don't know my father's side of the family so I have no idea... -
ARCHIVED What Do I Do Now?
SpiralArrow posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello again everyone, I've been waiting close to three weeks for the results of my antibody test and I finally got them yesterday. They're negative. All I was told over the phone by a different lady is that I'm borderline anemic. I have been eating as gluten free as possible for the past week because my results were taking so long, and to be honest, I've... -
ARCHIVED Blood Test Advice?
SpiralArrow replied to SpiralArrow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks again for the replies. I sort of did this. I carried on eating what I considered a healthy normal diet, but threw in a takeaway or two, some pizza and my favourite muffins! The discomfort was worth it. Well, in some cases. I actually got so sick after a few days of doing this I had to have some gluten free meals just to clear out my... -
ARCHIVED Blood Test Advice?
SpiralArrow replied to SpiralArrow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for the reply and the welcome mushroom. I'm glad I asked, I had a feeling my doctor was giving me the wrong advice, which is a bit worrying. I've been eating how I normally would the past couple of days and I've been feeling very ill. I'm not sure how long I can keep doing this to myself, especially when I know how I could make myself feel better... -
ARCHIVED Blood Test Advice?
SpiralArrow posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm new here, so hello everyone. I have a question regarding blood testing. I thought I would really have to fight for my doctor to take me seriously because she has a habit of trying to pass off any health problem as a "virus". But as soon as I started describing some of my symptoms (white bits/mucus in stools, brain fog, insomnia, uncomfortable bloating...