eluvsphish

My doctor is also not understanding. I'm skipping a new pediatrician and going right to a gastro for my son. In the meantime, I just sent away for genetic testing through Enterolab. It was almost $200, but worth the peace of mind. The way I feel is that if he is carrying a gene, then he is going to have the disorder. (And since I just found out that...

For my 3 year old son, I noticed major changes within 3 days. Within 2 weeks, he was back to being his happy-go-lucky self that I had known the year before. But, you have to be very strict. Now that we have been gluten free for almost 5 months now, I can tell the minute he has been cross contaminated. He gets crabby, argumentative, and ready to fight...

I just recently went gluten free and I was SO sick at first. I thought I was going crazy because it made my hives SO much worse. I was sick and miserable until about day 5 or 6. Just remember that your body has had that "crap" in it for many, many years. And, it will take a while for your body to get back to any sense of normal before you will fell better...

Thanks so much! I told myself in the beginning that I was only going to do it for 2 weeks. I thought, "well, in 2 weeks, all of this gluten food in my cupboard won't be bad yet, so we can still eat it if that's not it." Well, by day 4, all of the gluten food was either in the garbage or donated because the changes were almost overnight for us! The first...

Thank you!

Thanks so much! And you are right! I was talking to a friend yesterday who grew up in Germany. She knew she was gluten sensitive since she was young. I so wish I could go back to every doctor I have seen and tell them that they need to do this. The problem is that so many of them have no idea about celiac or even where to start with testing. I am so...

Wow! Our lives do sound a lot alike. I forgot to mention in my story that I had tonsillitis so much too. I also had a long bout with vertigo that no doctor could figure out. I got tired of hearing that I just needed water and rest. I am also immune to amoxicillan as a result of all of it that I took as a kid. I also couldn't take Benydryl, Alavert...

Thank you SO much! It feels wonderful being a part of this forum now where there are tons of people who understand exactly what I am going through.....especially when some members of my family are still in denial even after I got my results.

I should add that I wrote this for a non-celiac website, but I am so happy to post it here! I would love any feedback, as I just received my test results this week!

I will never forget the words my mother told me when I was seven years old "you have to leave the family reunion so we can get you to the hospital." "Hospital? Why I do I need to go? I feel fine and I want to stay in Kentucky with my family!" But, I wasn't fine. I had tonsils the size of golf balls and a diagnosis of mononucleosis. And this was only...