slee11211
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About Me
Undiagnosed until later in life. Given the "hypochondriac treatment" for most of my life...my poor mom never knew what was wrong with me. Just super lucky that this never became an immediate and horrible threat except for once (9 mos of crippling IBS, no docs or eastern practitioners could figure it out. I was told to "heat up some salt and place it in my bellybutton". No kidding).
Strangely, even without knowing I had Celiac, I always somehow veered towards foods that helped put me on the mend. There was a long period where the ONLY things in my kitchen were Coco Crispies, soymilk and vegetarian vegetable soup. I literally didn't want anything else, and after basically subsisting mysteriously on this for about 1 year, I went into one of the most amazing times of my life! Felt completely happy, not depressed, alive, like I had never felt before.
Super tempted (13 yrs later, post diagnosis) to eat this same diet....but it wouldn't be a very good example for my child. ha.
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ARCHIVED Really Torn About The Testing Process For Son - Please Weigh In!
slee11211 replied to slee11211's topic in Parents, Friends and Loved Ones of Celiacs
Also thanks for the R.O.C.K idea! And the distraction method....good stuff. And Cathy, good luck to you too. I've been stumbling along with this thinking that as long as he seemed healthy, it wasn't a huge issue yet. But I think after we get our own selves sorted (it was a lot of work for me, I was in bad shape!), we have to move on to the little ones... -
ARCHIVED Really Torn About The Testing Process For Son - Please Weigh In!
slee11211 replied to slee11211's topic in Parents, Friends and Loved Ones of Celiacs
Wow....thank you everyone for the wealth of information and incredible insights. Hearing concrete answers from others who have walked this road helps. Lisa, thanks for the list, I will copy it down and use it - he is still eating gluten regularly so at least there's that. And to everyone else, thanks for the encouragement. I'm still not entirely sure... -
ARCHIVED Really Torn About The Testing Process For Son - Please Weigh In!
slee11211 posted a topic in Parents, Friends and Loved Ones of Celiacs
Hi all, I'm hoping some other parents who have dealt with this can shed some light for me. I was diagnosed at 46, but only through blood work (new doc, naturopath, he's celiac, he didn't feel I needed to go through another biopsy). Had a full work up 2 yrs prior (diff doc) because of crippling GERD and the blood work was negative, biopsies were negative,... -
ARCHIVED Can Anyone Offer Help For How To Find A Good Restaurant Where I'm Traveling?
slee11211 posted a topic in Gluten-Free Restaurants
It's a bit out of the way...Humboldt county. Will be there for a week at Thanksgiving, and given that it's such a health conscious place, I'm thinking they might have a number of restaurants that are either farm to table, or very Celiac friendly. Any help on how to go about researching? Any ideas would be helpful...not a ton of time to research, and my mom... -
ARCHIVED Took Swig Of Edensoy With Wheat Barley Extract...
slee11211 replied to slee11211's topic in Coping with Celiac Disease
Thank god, nothing major! I have been a bit foggy and tired...but that comes and goes so often (from being undiagnosed until 46!) that I can't tell if it's out of the ordinary or not. So...good lesson. It's not always going to be a major disaster. And read labels, even when it's soy milk. -
ARCHIVED Took Swig Of Edensoy With Wheat Barley Extract...
slee11211 posted a topic in Coping with Celiac Disease
How scared should I be? I cannot BELIEVE that a soy milk had wheat and barley extract in it!!! Damn Storm (sandy), I grabbed only soymilk that was left on the shelf as an emergency measure. Opened it, had one mouthful and instinctively knew something was up...that was a taste I had not had for probably over 2 yrs....barley malt. Looked at the ingreds and... -
I went probably 30+ yrs undiagnosed. Different times of extreme stress and then having a baby brought it on hard. When I first found out and eliminated all gluten, I noticed an increase in energy and stomach issues lessened a bit. But I didn't get a ton of relief with thyroid issue, itchy skin, carb cravings, etc. So after a year, I read some articles that...
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ARCHIVED Need Help - Four Months Post-Diagnosis
slee11211 replied to myadidas1981's topic in Coping with Celiac Disease
Not sure if you have a cooperative MD, but it could be helpful to do an in depth panel for allergies. Pretty common to find that a lot of foods you wouldn't expect are now allergies. I was lactose intolerant since college (46 now) and turned out it wasn't intolerant, was full on allergic. If you're really good with foods, you might be able to just do elimination... -
My son's friend's mom: " How are you? I know you haven't been well lately" Me: "Getting better, thanks. Found out I was full blown Celiac, so no more gluten for me. It's been really hard to get used to." "Really!? Because I went totally gluten free to get 'bikini ready' for our trip and it's SOOO easy!" Blank stare. (in my head: "Assholes wear bikinis??"...
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ARCHIVED Need Help - Four Months Post-Diagnosis
slee11211 replied to myadidas1981's topic in Coping with Celiac Disease
Question for you: are you eating many "gluten free" replacement foods? (ie: gluten free bread, gluten-free muffins or cookies, gluten-free pizzas, etc) I'll answer when I see reply, as it may not pertain to your situation! -
ARCHIVED What Do You All Think About Idea That All Grains Must Go For Many To Heal?
slee11211 replied to slee11211's topic in Coping with Celiac Disease
This is so good to hear!! I'm so glad you've had that kind of luck! I've been at this only 2 months, but can feel already that this was the correct road, and I started down it with intention of it being for the rest of my life - not a diet, not a fad. I've not been able to give up the sugar completely (and it's only hidden sugar in stuff like coconut milk... -
ARCHIVED What Do You All Think About Idea That All Grains Must Go For Many To Heal?
slee11211 replied to slee11211's topic in Coping with Celiac Disease
have a talented acupuncturist who adapted NAOT to her work (she has had incredible success curing food allergies)....uses muscle test for sensitivity. More than anything, I wanted to know how much worse it was than my allergy panel was showing (what about all the "pre allergy" sensitivities if i had THAT many allergies? I had a ton). Turned out, I was sensitive... -
ARCHIVED How To Approach Parents
slee11211 replied to RashyA's topic in Parents, Friends and Loved Ones of Celiacs
From my understanding, absolutely. I was diagnosed only last year, but honestly, in my particular case, both my doc and I believe that Candida was my MAIN celiac symptom and complication (I was likely celiac my whole life, diagnosed at 45). I never had the typical GI symptoms, and I have dosed myself with sugar and carbs regularly my entire life (I was so... -
ARCHIVED What Do You All Think About Idea That All Grains Must Go For Many To Heal?
slee11211 replied to slee11211's topic in Coping with Celiac Disease
So did you re-do your biopsy? This is what's throwing me....they are saying that people's "symptoms" are lessening (so they think they are healing), but when they re-biopsy, they find that the inflammation is not healing on just gluten-free. So basically, most of us are either not going to re-biopsy, or didn't in first place (didn't need to, my numbers were... -
ARCHIVED What Do You All Think About Idea That All Grains Must Go For Many To Heal?
slee11211 posted a topic in Coping with Celiac Disease
Hi all, Interested to hear how others are feeling about eliminating ALL grains from diet to truly heal and stay healthy as a Celiac - I'm 9 months into diagnosis and am beginning to run across lots of information pointing in this direction. Began reading this in articles when I was researching the SCD diet (which isn't right for me, I don't have the classic...
