amandapants

Oh - and I should also add that based on my symptoms and my specific deficiencies (A, D, anemia) the GI said he fully expected a positive Celiac diagnosis, but no such thing happened! Perplexing.

Here's my last update! My repeat blood tests and endoscopy biopsies both came back negative. Doc found reflux, inflammation, and some polyps while he was digging around, but nothing in my upper bowel/duodendum. He said it looked very healthy with no symptoms of celiac, and right he was. He thought based on the inflammation in my stomach I might have a bacteria...

Just a quick update since ya'll were so helpful! I sent my labs to the Chicago Celiac center and their doctor recommended retesting via a GI (my tests were through an independent doctor specializing in Functional Medicine). She said it may or may not be Celiac, but I had enough red flags (elevated CRP, low iron) plus digestive symptoms to warrant a specialist...

Thanks for the Floradix recommendation - I actually just bought that brand, but in tablets. My iron wasn't significantly low, just low enough to consider addressing it. My plan isn't to load up on iron like I did when I was pregnant and anemic, but just to take a little extra with my multi and other supplements to keep myself stable. So it sounds like...

Given my other test numbers, do you think it would be worth it to have the biopsy though? My doctor - granted he is not a celiac specialist - didn't think additional testing was necessary. Is it common for a biopsy to come back positive if the other tests were negative? I'll do it if it'll help but I don't want to waste my (or my doctor's or husband who has...

Thank you for the response Thea! The panel my doctor ran was the Genova Antibody and Celiac Panel. We didn't pursue additional celiac testing since the primary markers were negative. From what I read it wasn't worth it to do more tests unless those were positive, but I don't know much about it. Doc's advice was just 'it would probably be wise to not eat gluten...

Hi there, I'm new here - a friend has found this forum so helpful to her that she recommended I see if anyone can help me understand my lab results and figure out if I have enough of a gluten issue to eliminate or if perhaps there's something else going on. The quick backstory - I've had IBS for years, a combination of excruciating gut pain, diarrhea...