watata

My D and B 12 are ok now. Back in March my D was 13. They started me on 50,000 units weekly. It was still only 28 in July so I am still on 50,000 now every 5 days. Now it is 38. B 12 is good. I am tired, but I don't sleep at all. I can't even sleep with ambient. It's annoying.

Blood test said weak positive in comments. Test: IgA,Tissue Transglutaminase Ab, S right at 4 (less than 4 normal range per reference on sheet) Now 6 weeks later redone at 1.8 normal range. IgG,Tissue Transglutaminase Ab,S 6.3 (less than 6 normal range) now 3.1 6 weeks gluten free. They just did TPO antibodies and 21 Hydroxylase AB and they are...

That is exactly what it says. It was does done at the Mayo clinic. Don't know why there is no number after the second 5 . The doc says they can't be 100 % sure I have celiac. they say I can do a gluten challenge in a year and another biopsy. Uh No . I feel so much better gluten free why would I want to torture myself. No test is 100 % . What proof...

Can Anyone interpret gene pairs? I was told I was positive for celiac gene pairs. Results are as follows. Was curious how to read the results exactly. Celiac gene pairs present? yes DQ alpha 1 : 05:01,05 DQ beta 1 : 02:01,02:01 "Comments: These genes are permissive for Celiac disease. (The absence of HLA Celiac "permissive" genes would...

I am just as confused. I thought the same thing. Even the pathology report says that the damaged villi is most likely from celiac/sprue. So I really don't know. I'm as confused as all of you. I wish they would have just said you have it or you don't. I asked why they thought I didn't and he dodged the question over and over. Like I said I couldn...

Yes I have been extremely strict on the diet. And yes think he is a pretty lazy doctor who just wanted to work 8 to 5 and not take call or work weekends. I could be wrong, but I am not impressed by him... not at all... not in the slightest.... but there are good and bad docs wherever you go. Hence why you cannot trust every one you meet no matter how...

So I had my 6 week follow up appointment. They retested my TTG and my numbers are now within normal range. My GI still says I may not have Celiac. Even though the biopsy was positive and the TTG antibodies positive before going gluten free (now normal) and I do have the celiac gene pairs as well. Copied from result page Not sure how it is interpreted...

Well I am so glad I listened to all of you and brought my own food. I ended up being in the hospital 9 days for a simple laparascopic ovary removal. I ended up having an adrenal crisis and being placed in the PICU for a while. I was sent home friday with a pulse of 47 BPM and in a steroid induced diabetic state. The insurance company pushed me out. The...

Unfortunately I am all too familiar with hospitals as this is my 11th surgery. I had a minor procedure in July that was supposed to be an in and out in an hour and I was there for 5 days so my track record is not good for doing things quickly. My body does heal and respond just not quickly. I have a hard time with nausea, pain control and breathing post...

What iodine thing?

I'm having surgery tomorrow to remove my ovaries due to large complex cysts and other troubles. They said I could be in the hospital a few days. I have never been hospitalized since being diagnosed. Are hospitals pretty good at following gluten free diets and keeping cross contaminants away. I am horrible with nausea with anesthesia I definitely don't...

I have been gluten-free now for two weeks. I have not eaten out but maybe twice and very particular with the waiter and off of a gluten free menu. Today my family went out for Labor day and I went to a place I had been before. They weren't busy, I ordered off the gluten free menu, but before I left the restaurant I was in the bathroom twice with D and...

Thanks for your quick responses and encouragement! I will try going down to the basics and add things back in and see if that helps. Thanks!

I know a lot of you here have the big D, but I have and have always had quite the opposite. I can go days, even weeks without going. I have had every test known to man and nothing is "physically" wrong. They say it is just the way I am wired and should improve now that I have been diagnosed. That some celiacs are constipated. I have only been gluten...

I wanted to believe that Mayo would help me. I am hoping that their celiac theory is the answer as I really have no further follow up at the mayo clinic. They kind of said try this and see what happens. Follow up with your doc back home or call us. I felt rushed out the door when they had a possible answer. They were also more than happy to have my local...