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Phayah

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Phayah

  1. Phayah
    My thyroid tests keep coming back normal. I had one abnormal (0.25 TSH) a year ago. So confusing! Hopefully, the ultrasound will be definitive.
  2. Phayah
    My GI doc told me that Celiac disease is not visible and must be seen under a microscope (damaged or destroyed villi). I just had an endoscopy and he said he found a couple of minor things but overall everything looked really good. He found an inlet patch (congenital anomaly), minimal erosive gastropathy (maybe h pylori), and z-line variable (no idea). ...
  3. Phayah
    I'm 27 and my hair is falling out too. The doctors have done all kinds of blood tests (except Celiac) and they've all come back normal. They are now telling me its just stress?! I have nothing to be stressed about, other than the possibility of going bald lol! Anyway, I'm still waiting on results from a thyroid ultrasound, upper GI biopsies, and I have...
  4. Phayah
    After a two hour wait (they were behind) I finally got in for my procedure. I was so scared! I've never been put to sleep and the idea of a tube going all the way down my esophagus, through my stomach, and to the beginning of my small intestine was a bit much. I told him I wanted to be checked out for Celiac and he said they always do that so hopefully he...
  5. Phayah
    Thanks guys. I feel like I'm losing it with all the run-around. Somehow I ended up in the ER today. It was REALLY scary. The brain fog has been slowly taking over and the past few days I've had some cognitive problems. I've been highly agitated, stuttering, losing my train of thought, forgetting really important things, and grasping for words. When I called...
  6. Phayah
    I'm SO angry! I called to schedule an appointment with my regular doctor. The woman asked me what the problem was so I told her the new symptoms I was having. She said, "Are they related?" I said, "I don't know. Isn't that what the doctor is supposed to figure out?" She said, "Well, if it's not related we have to schedule separate appointments." I replied...
  7. Phayah
    I have been eating maybe 1-2 gluten items every day for the last few months. I just had a 3 day gluten feast. I did go about a week without though. I've suspected for a long time I may have issues with dairy, eggs, soy, and/or various food sensitivities due to my relentless migraines. I guess I never really believed in the food connection until now. The problems...
  8. Phayah
    I'm going through the process of getting tested for Celiac disease and other possibilities right now. About a year ago, I started having a numb/tingling feeling while lying down wherever I was touched. So weird! Then one morning I woke up and my entire chest/head felt like that. My doc told me to go to the ER but they said it was just anxiety and low magnesium...
  9. Phayah
    Yeah, she wanted to try to do them at the same time but then she saw "urgent". So, she asked if I wanted to come for the endoscopy on Friday while they get approval for the colonoscopy because it would take longer to get. Luckily, I don't have a copay but it kinda sucks because my husband has to take off work. Could a colonoscopy show evidence of Celiac...
  10. Phayah
    Yeah, bloating and pain makes things a lot less enjoyable. I also love onions! I have often wondered if they might contribute to my migraines, eggs too. =( I'm thinking if we are sensitive we might have to stay off casein as well. There are strong links between MS and dairy. Plus, I read that 50% of people with celiac/gluten sensitivity also have problems...
  11. Phayah
    I think it's highly unlikely I've ever been bitten by a tick. I'm a very bugaphopic person and I like to stay indoors a lot. Perhaps when I was very little but I'm 27 now. I don't think enough of the symptoms match up. My mother was tested for lyme disease before her MS diagnosis. She actually was bitten by a tick several years ago. She had to go the ER...
  12. Phayah
    I know how you feel about the psych meds. I've been diagnosed with ADHD and OCD/anxiety. The SSRIs are terrible! They make me want to sleep all day and I get extremely apathetic. After 5 or 6 years of trying various pills I had to just give up on SSRIs. I haven't been diagnosed but I think it's possible my mother and I have Celiac disease or a gluten sensitivity...
  13. Phayah
    Blah, I finally mustered up the courage to call my doc and request a blood test but the clinic is closed! I guess they've got Halloween business to take care of. Hopefully, I can keep my resolve and do it tomorrow lol.
  14. Phayah
    I can't believe this! My mom said she went to her doc and when she asked for the blood test he acted very strange. She said he seemed shocked or freaked out?! Then, he said that he had never tested anyone for Celiac disease! The man has been in practice for at least 30 years. He said he was very interested and that he would be doing some research on the subject...
  15. Phayah
    Well, I have thought of that but I'm just so tired of all the appointments. It doesn't help that I feel like crap. I will make my appointments for the neuro and GI tomorrow though. There will be a "consultation visit" with the GI doc before any procedures are performed. I was hoping I could request the blood test then? I guess it depends on how far...
  16. Phayah
    My mother's appointment is tomorrow and she will be asking for the blood test. She is also very interested in trying a gluten/casein free diet to see if it might help, regardless of the test results. I will update. =)
  17. Phayah
    My first thought was that I had a food allergy but I didn't have typical symptoms. Either way, I did stop eating the bars that were causing me trouble. I had to because I ate them in the morning so they pretty much ruined my whole day. At my checkup the doc told me my sinuses were inflamed which was a surprise. I have post nasal drip, tinnitus, and ear congestion...
  18. Phayah
    I know this is ridiculously long and 90% of you will never read it but I must get this off my chest. I've gone through a lot of misery and soul searching since I've had my first child. He really made me realize that I'm not actually a normal human. I have so much guilt over not being a good parent because I always feel like crap. I swear sometimes I feel...
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