silveylane

FINAL POST TO EVERYONE WHO IS FOLLOWING MY 15 Y/O: After sharing my gloom and doom with each of you on Friday night, and tuning out at 11 PM, I never got to go to sleep. I went upstairs to make my final check on my grandson. From there it went from panic to hysterical breakdown. Hours. Holding him and listening to his sobs and terror that he had been...

FOR ROSETAPPER23: First, I don't know how you physically drug yourself out of bed to e-v-e-n care for your son when he was 15.....except through that stronger-than-life love we each have as MOTHERS! Your son is so blessed to have had you fighting for his life, and in the end you as well were rewarded in your own personal health. I am happy for you...

TO IRISHEART: OhMyGosh! Incredible. Your post is inspiring. I have printed off so many "lists" of gluten-free and nonGF that my piles are scattered everywhere and I need hours to organize, inbetween the demon bathroom "inspection and cleanup". I do not know what "PM" means, but yes I would like for your to email me your printed information. ...

First, this is for PRICKLY: We cooked a simple, kinda light, gluten-free pizza tonight together, light on the sauce, skim mozzerella cheese, pineapple tidbits, canadian bacon ham, and a few turkey bacon bits. He was EXCITED.....and we both knew there was a huge chance of expulsion. It was actually okay for the taste, crust a little weird. Think I...

To All of You: Sorry I have not responded. The kid, myself and my husband have all been having serious meltdown primarily over the child's huge anxiety. To respond to each of you: Great point and info about getting Celiac blood tested for future use in qualifying for mandated diet. Malabsorption & Hunger: Hit me between the eyes! It...

Hello everyone on this thread. I've skimmed through all of your very good and caring responses with my eyes dripping with tears. You guys care more about my 15 y/o and are "strangers" than do the people I know and these doctors. Ya'll explain things in great detail with useful information, tips, and encouragement. Right now, ya'll are invaluable! Thank...

Great info! I did get some Coconut milk probiotic yogurts yesterday. Didn't know about the digestive enzymes. Holistic doctor is "new" for me and I will have to search for one. The Ativan - the psych knew I am not a fan of any short term addictive med, but he is over the top stressed, so I will see. I doubt it will work anyways. Thanks for helping me...

Thanks Prickly! I think guys are different with Celiac than gals? The boy knows a lot of things now will come right back up, but says he just wants the pleasure of tasting the whatever it is. So he's done that a few times, and while I'm around to help him with the after effects, I figure it's better for him to learn it now. Though sometimes he loses his...

Thanks for the advice on berries. Think I will have to forgo drinking rice water though -- I love cold water

My 15 y/o has had severe reflux, vomiting, spasms, and diarrhea over many years, but this last episode has lasted 4 weeks straight, 24/7 until I put him on a gluten-free diet. I know he needs plenty of fruits & veggies. These things seem to aggravate the situation though. Is it because of the "seeds" or covering, or are these just too much fiber at...

You guys are fabulous and a huge encouragement. I can tell that most of you have traveled some very, very long roads to get to where you are today. I hope I can shorten that road for my 15 y/o. One of you mentioned that many celiacs are overweight and correlated that with an insatiable hunger due to not metabolizing needed nutrients. This child was...

Curious. Have you had any gallbladder imaging studies or a gallbladder HIDA scan? I am not Celiac, but suspect my very ill teenager is. However, your post with "feel like I'm 3 months pregnant" caught my eye. I had my GB removed 2 months ago after 8 months of feeling like I was going to deliver a baby by 8 pm every night! Other GI symptoms too, but...

Thanks to each of you for the exact tests to get done. During this past week, if I have not been cleaning up the dreaded GI symptoms, obsessing over what he could eat/try, or spending time with him holding him and reassuring him that he is not going to choke and die---I have been reading your forums and everything on the internet about celiac disease. Looking...

P.S. I have a full metabolic panel done on him every 6 months as he has lipid disorders (high triglycerides, very low HDL) and have been told he has "Metabolic Syndrome" previously along with other neuropathology -- hand tremors, gait, ADHD, weak muscles, etc. Blood glucose is always great, but I am also researching hyperinsulinemia as diabetes runs in...

Thanks for the "DEMAND" encouragement. The hospitals just put him on IVs, water and no food. Then 3 days later after negative radiology results, release him with prescriptions for reflux, antispasmodics, and anxiety. Reflux med has helped. Antispasmodics made vomiting worse and more often. Child can gag, throw-up, heave 4-5 times successively immediately...