e320-cdi
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by e320-cdi
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It seems to me that MS is commonly misdiagnosed when in fact celiac is the cause. I am going to get another MRI in a little over 5 months to see how that looks. I local physician said that he had a patient and her brain was "full of plaque" and it cleared up after going gluten-free. I have recovered greatly but I am dealing with the double vision...
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I used to stay hot all the time and get a stomach ache. Now I don't get hot really at all, and stay cold more now. My hands do stay a little chilly.
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I was able to find the 1000mcg and got them. Will let you know how they do! They also have B6 and Folic Acid.
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Will do. Will try to get those today do you have a recommended dosage?
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I just wanted to give an update to my tests and current condition. I am still gluten free and have not had near (or any, for that matter) stomach upset. The blood work, as expected, returned negative for celiac. I requested the results for the blood tests and am awaiting them. I was told that the B12 was "within range" but I don't have the numerical values...
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I just wanted to report that after a one week gluten free diet, I have not had D in a whole week. I am still awaiting my test results, but am very happy with what I am seeing so far. Still waiting for the vertigo and eyesight to clear up, but I understand that may take some time.
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Did you happen to have any eye pain/redness with your symptoms? It seems as if my eyes are not producing the tears they once were and they are a little red.
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Yes - that's exactly what it is like. Like the muscles in my neck are very tight. I typically don't get headaches like this so I attribute it to going without gluten for a few days. I do get headaches, and many times in the neck, but this one feels worse and feels tighter. Luckily the eye pain subsided and it is mainly in the neck now. So some improvement...
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And here comes the headache! Around one eye and in the neck. Feels different than most but as some others describe. I really wonder how I will feel when this gets out of my system...
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I did not eat gluten on Sunday or Monday, so two days. I felt so bad and had to miss so much work as a result of being sick I wanted to try something. So far my stomach has done much better as I have not had to go to the restroom right after eating. It really sounds promising that this was my problem. I sure hope so! I mentioned it to the doctor...
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I went to my PCP today to follow up - the first time I have been since I came down with this illness. I was happy that Celiac was not considered initially, nor were vitamin levels. I had these blood tests run today, and should know something within a week. Very hopeful these test reveal something. I do know that I don't feel like I have to go to the rest...
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I am going to see the PCP today (Tuesday). Wish me luck!
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The more I read about celiac, the more it fits what I have been dealing with. On routine blood tests, one of the three liver enzymes have always come back elevated. The other two never had been. The doctor has always said this could be to have a few extra pounds and is probably nothing to worry about. But now after reading it seems like celiac can cause...
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It's interesting how many people have had neurological symptoms with Celiac. My biggest issue right now is cognitive. I hope being gluten-free will help things heal. The MRI I had revealed a 2cm lesion which at the time said is causing my problems. I do feel fortunate to be able to get around now - I hope I am able to return to work very soon. Takala...
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Will have to try that. Thanks!
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Thanks everyone for the replies. This has been some journey and recovery is slow, but I can drive now and my vision is good enough to see, but I still see double out of my extreme corners of my vision. I read the article here Open Original Shared Link and it sounds very much like what I am dealing with as well, but mine has not gotten that bad yet. It...
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No - they did not do a spinal tap. Another reason I wonder if he was correct.
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Thank you for your response. I do recall (even in the state of mind I was in) that the physician said my potassium was low. After reading about some of the diagnosis and how MS patients received it, it seemed to be a long, enduring process. With the feedback I have received regarding the neurologist as well as this being my first symptom, I am just not...
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Thank you everyone for the replies. I know most physicians have our best interest at heart, but they don't have the time or really the means to go out and look at all of these issues. I think it helps to get as much information as possible going in. As for it being hereditary, I think my uncle had it as he had stomach issues his whole life including what...
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I am in the United States. I guess why I question the MS diagnosis is that the PCP did not make the diagnosis, and the neuro looked at the MRI and just said it's MS. He didn't question any history or anything. I think just because of my age and what the MRI showed led him to that diagnosis. My girlfriend commented several times on the fact I don't eat...
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Hello, I wanted to get some board members thoughts on some of my symptoms as I want to get some other ideas about what my problem may or may not be. I am a 35 y/o male and around October 9th started getting some neurological symptoms that pretty much came out of the blue. A few days prior I felt like I was coming down with something - just not really feeling...