Ginger7

Oh yes, we discussed the pros/cons of gluten-free B4 scope and he is back on gluten until scope. So, I'm looking forward to more information from scopes, which I hope r soon. I sure hope his colonoscopy prep is not as bad as mine was...

Hi, I've posted b4 about my 8 year son who has persistent stomach aches and diarrhea with occasional constipation. His labs came back mostly normal, although a few notable things: Low ferritin Low vitamin D CBC normal ESR 9 (cutoff less than 10) Celiac panel negative serology, one positive gene DQ2 Fecal calprotectin 222 Way down in growth charts...

Also note that b12 is absorbed in the latter part of intestine, the terminal ileum so one possible idea to throw out there is that celiac has caused damage in the duodenum or first part of intestine causing the low iron. The latter part of the intestine, terminal ileum may not be damaged and hence b12 is not low. What is the range of b12 given? Seems like...

Assuming your doctor has ruled out obstructions and/or inflammatory bowel diseases such as ulcerative colitis and crohn's disease? Though you say CT scan normal which might be helpful, have you retrieved all your reports and maybe go for second opinion? What about labs? Slight fever suggests some sort of inflammatory process ongoing. Were samples taken for...

As I'm sure others will note, if you want to know how your intestines look, you need an endoscopy and your GI will take 6-8 samples to detect and confirm celiac. You have to be eating gluten, as your intestines can begin the healing process quickly and therefore make any biopsies falsely negative. I don't know how long a few days or weeks gluten free would...

I would be concerned with the suggestion to stay on miralax indefinitely? That seems strange to me, could be slow transit?? But could also be masking underlying disorder. Agree with previous post, suggest tests for celiac and inflammatory bowel diseases.

Went to John's Hopkins, good news is don't have to do anything but monitor. So I will get an MRI in six months. Bad news-no fight club for me

Well, here is an update. CBC pretty normal, lots of low normals but within range. A few interesting results, B12 high normal Ferritin 17 with low end of range 10 Vitamin d low 34 with low end of range 31 I've read that both iron and vitamin d are absorbed in duodenum vs b12 in the terminal ileum, early celiac disease often presents with low iron and...

Someone already mentioned it but thought it was worth repeating, what about homemade shakes? You could make something free of foods she cannot eat but also sneak in some protein and other good stuff. My kids are the same way and sometimes they will drink a healthy tasty shake.

Just wondering, are you certain it was poison Ivy and not DH which can c Be extremely itchy with some clear fluid. Need a biopsy of area next to rash to test. DH is demirtitis herpertiformis.

Why is it that my ped dr has no idea what I'm talking about regarding Prometheus testing??? They said first they do bloodwork, then celiac testing then referral to GI. Why on Earth would you subject an 8 yo to multiple lab sticks when a parent has Celiac? I ordered the test kit myself, it will be overnighted to my house and I'm bringing the requisition slip...

Thanks everyone, I feel alittle better. At least for my son, regardless of testing outcome, I will be going gluten free for him since I know my tests weren't 100%, but I feel tremendously better gluten free. All my vitamins were very very low due to malabsorption and seeing him in the bathroom sealed the deal for me as it reminded me of me!! Having trouble...

And I want to say I had no idea he had loose large volume stools until I finally "caught" him in the bathroom today, looked at it and yes I took a picture with my phone. I don't care if people think that's gross, actually I don't think this community would...he is 8, it's hard to get him to tell me what his poop looks like!! The other symptoms are very sketchy...

I've made a few posts since December 2011, all about myself. I have gluten intolerance/Celiac. Call it what you like though I do not have a positive biopsy. My genetic testing was a category 7 from Prometheus, very high risk, w/ only 8 as highest risk number. I have three kids, 8 yo boy, 2 yo girl and six month old girl. My son has always been small but...

Keep it simple, rice and plain meat are great options. By just keeping foods simple, you can avoid gluten without spending a ton of money. I found that by starting out simple, I could adjust and slowly explore other foods without getting overwhelmed.