Jsny1010

Welcome to the club, I think almost everyone here has been diagnosed with IBS at some point.. my blood work was positive / neg biopsy - both doctors swear it can not be celiac...but I'd trust your gut, keep a food diary and start out slow - eat normal foods but take out one thing at a time (Gluten, Casein, Lactose, Rice, etc.) It might take a while to rule...

*Help with Lab Work* mistype I got some of my bloodwork back that they did in the hospital right after the biopsy (that came back negative) My doctor is going to run some more bloodwork, iron, hep, etc. Since he swears I dont have celiac because his biopsy was negative, is it possible that the enzymes could be above normal? here are my labs ALT...

I agree with Skylark, my results were the same as yours - i stayed off gluten for over a week and felt GREAT, added gluten back into my diet and back to feeling sluggish and crummy. I didnt like the thought of changing my diet without a firm diagnosis at first but it is worth it to feel better, and hopefuly in 6 months i can have dairy again.. But to...

Hi Dani, i dont know if it helps but one of my huge symptoms is anxiety over things, and they are things that definitely should not cause my anxiety i've been given different medication to help, nothing seems to help unless im on a tranquilizer but thats just not a life for me lol.. I noticed after being off gluten even for just a week my anxiety level was...

tTG IgG/IgA, Endomysial ABS IgA, Gladlin IgG/IgA.. all blood tests or entero does the fecal, if they come back positive most doctors want a biopsy to confirm.. some dont, but either way its the same diet knowing early is pretty great does your 6 year old have symptoms of celiac?

In my limited experience the tTG IgG is Sensitive and Specific - all the blood tests are used because no one test will show positive in every patient. Depending on the severity of the damage biopsy results are a great way to confirm the diagnosis, but its not 100% that they will be able to see damage in cases where the celiac disease is in a juvenile form...

I have almost the same issue, my symptoms dont usually happen right away - almost 18 hours later my stomach will cramp/turn and ill feel horrrrible for a day or so (after eating a large amount of gluten like pasta). I was gluten free for over a week and I felt amazing, no headaches, no stomach issues, normal digestion, no heartburn, the list goes on and on...

Nah no worries, my daughter has eczema and asthma also its terrrible, so far no reactions to gluten *knock on wood*

You are right, I did a poor job making the point of autoimmune vs non-autoimmune - NCGI or celiac disease, or even just Wheat allergy, best medicine is to just stay off of it.

Im not super knowledgeable on the subject of NCGI vs celiac disease but I can say one thing, NCGI doesn't cause damage to your body, it is more of a reaction to not being able to digest the wheat or gluten and causes some discomfort, ibs symptoms etc. BUT Celiac causes your body to be flooded by antibodies and that is an auto-immune response - that causes...

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Ah yeah, no I understand that - I figured with these types of issues it would be good to monitor at some point to see if the blood work would come back normal after a while on this diet, honestly i've never dealt with any issues like this before - im use to going to the doc and just doing what they tell me to. i'll get that report and post that up here

Well I've been on the diet for a week now, i feel much better all around - not 100% but its progress. I said I would go find another because this doctor wont acknowledge anything I tell him, he wants me to eat dairy this week, which will upset my stomach and than gluten next week which will do the same and come back to him with the results, after that who...

Yeah no kidding, when he told me that I thought you have to be kidding me.. im having an auto-immune response to gluten but its not celiac.. ah yeah im going to goto another doc this one has already caused me enough grief I haven't had the Gene test, do I request that from my doctor or do I need to goto a separate company?

Yeah, I did as much research and read alot of the clinical studies about the EMA i tested positive on those, my tTG iga/g was within the normal range but he didnt run a complete iga on me so without being a hypocondriac ive just let the doctors kind of give me guidance and the GI i have doesnt talk to me he just tells me the reports and leaves thinking about...