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Mom2Will

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  • alicewa

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  1. My 9 year old was diagnosed with celiac in March of 2012 by blood tests and a positive biopsy. We put him on a gluten-free diet the day he had his biopsy done. His original ttg was 168. After 6 months gluten-free it went down to 31. We got his blood results back today (15 months after original diagnosis, 8 months after the last blood test) and his ttg...
  2. Thanks for the advice. I'll look into the Metagenics.
  3. I give him Culturelle Kids Chewable Probiotic everyday. We've been doing that for about 6 weeks or so and it hasn't seemed to have made much difference. Do you think it another brand would be better?
  4. My 8 year old son was diagnosed with celiac disease 6 months ago by blood test and biopsy. His ttg test result was 168 when he was diagnosed. After 6 months on a gluten free diet his ttg came back at 31! I am so happy and impressed that it came down so much. I've been so worried about cross contamination that it is nice to know that we are on the right...
  5. Yeah, I was wondering about that. I thought that since she has a sibling with celiac and tested positive on the DGP that he would just diagnose her without the biopsy but he still says that nothing is definitive without a positive biopsy.....
  6. My daughter had her Deamidated Gliadin A test come back positive at 33 (normal is 0 - 19) but her tTG came back well within the normal range. She isn't having many symptoms other than some constipation and eczema and her doctor is going to do a biopsy on her in a couple of weeks. She was tested because her brother has celiac disease confirmed with a...
  7. He's a little bit older but not old. And then I find out later that he told my husband that even if he has celiac "he can just start eating rye bread instead." Oh really? I would have more respect for a doctor who told me he really wasn't familiar with a condition but would research it rather than one who just gives out blatant misinformation. I...
  8. Ugh. I am so frustrated. My 8 year old son was recently diagnosed with Celiac. He had positive blood tests and a positive biopsy. So everyone else is being tested too. My husband went to his primary care dr. this morning and I specifically wrote down on a piece of paper to have them do the tTG test. So the dr. takes blood, etc. and then gives...
  9. I questioned the dietician about pet food and she didn't seem to think it was that big of a concern. He has a hamster in his room that has wheat in his food and we also have a dog and cat. I was just going to have him not feed the animals but do you think having the hamster and hamster food in his bedroom could be a problem?
  10. Good idea with the vinegar. I'll have to try that. Thanks!
  11. Thanks for the reply. The muffin tins just make me leery since they have that ridge along the tops of the muffin cups. Since I pretty much will never bake with regular flour ever again I decided to just replace them. The hand mixer just makes me nervous because I can tell there is flour on it and it has those vents to the motor. I'm worried that when...
  12. My son was recently diagnosed with Celiac disease. He started his gluten free diet yesterday. I'm going through my kitchen and trying to figure out what to scour and keep and what to toss and buy new. I have two crock pots that I use all the time and was wondering if I need to get rid of them and buy new. I've already bought new utensils, cutting boards...
  13. I am where you were a few weeks ago. A few days ago we got the blood work back on my 8 year old son and he tested quite high for both tTG and gliadin IGA. His symptoms have been loose stools (for the past 5 years!) and recurrent stomach pains that are very sporadic. His ped never tested him because he's always been in the 60-70% for his height and 50%...
  14. My son was recently diagnosed with celiac. Well, we are still waiting for our appt. with the gastro and possible biopsy. But his blood work came back with values over 160 for both tTG and anti gliadin IGA as well as he's had unexplained gastro symptoms for 5 years so I'm resigned to the fact that he most likely has celiac disease. It goes without saying...
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