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Mom2Will

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mom2Will

  1. Mom2Will
    My 9 year old was diagnosed with celiac in March of 2012 by blood tests and a positive biopsy. We put him on a gluten-free diet the day he had his biopsy done. His original ttg was 168. After 6 months gluten-free it went down to 31. We got his blood results back today (15 months after original diagnosis, 8 months after the last blood test) and his ttg...
  2. Mom2Will
    Thanks for the advice. I'll look into the Metagenics.
  3. Mom2Will
    I give him Culturelle Kids Chewable Probiotic everyday. We've been doing that for about 6 weeks or so and it hasn't seemed to have made much difference. Do you think it another brand would be better?
  4. Mom2Will
    My 8 year old son was diagnosed with celiac disease 6 months ago by blood test and biopsy. His ttg test result was 168 when he was diagnosed. After 6 months on a gluten free diet his ttg came back at 31! I am so happy and impressed that it came down so much. I've been so worried about cross contamination that it is nice to know that we are on the right...
  5. Mom2Will
    Yeah, I was wondering about that. I thought that since she has a sibling with celiac and tested positive on the DGP that he would just diagnose her without the biopsy but he still says that nothing is definitive without a positive biopsy.....
  6. Mom2Will
    My daughter had her Deamidated Gliadin A test come back positive at 33 (normal is 0 - 19) but her tTG came back well within the normal range. She isn't having many symptoms other than some constipation and eczema and her doctor is going to do a biopsy on her in a couple of weeks. She was tested because her brother has celiac disease confirmed with a...
  7. Mom2Will
    He's a little bit older but not old. And then I find out later that he told my husband that even if he has celiac "he can just start eating rye bread instead." Oh really? I would have more respect for a doctor who told me he really wasn't familiar with a condition but would research it rather than one who just gives out blatant misinformation. I...
  8. Mom2Will
    Ugh. I am so frustrated. My 8 year old son was recently diagnosed with Celiac. He had positive blood tests and a positive biopsy. So everyone else is being tested too. My husband went to his primary care dr. this morning and I specifically wrote down on a piece of paper to have them do the tTG test. So the dr. takes blood, etc. and then gives...
  9. Mom2Will
  10. Mom2Will
    I questioned the dietician about pet food and she didn't seem to think it was that big of a concern. He has a hamster in his room that has wheat in his food and we also have a dog and cat. I was just going to have him not feed the animals but do you think having the hamster and hamster food in his bedroom could be a problem?
  11. Mom2Will
    Good idea with the vinegar. I'll have to try that. Thanks!
  12. Mom2Will
    Thanks for the reply. The muffin tins just make me leery since they have that ridge along the tops of the muffin cups. Since I pretty much will never bake with regular flour ever again I decided to just replace them. The hand mixer just makes me nervous because I can tell there is flour on it and it has those vents to the motor. I'm worried that when...
  13. Mom2Will
    My son was recently diagnosed with Celiac disease. He started his gluten free diet yesterday. I'm going through my kitchen and trying to figure out what to scour and keep and what to toss and buy new. I have two crock pots that I use all the time and was wondering if I need to get rid of them and buy new. I've already bought new utensils, cutting boards...
  14. Mom2Will
    I am where you were a few weeks ago. A few days ago we got the blood work back on my 8 year old son and he tested quite high for both tTG and gliadin IGA. His symptoms have been loose stools (for the past 5 years!) and recurrent stomach pains that are very sporadic. His ped never tested him because he's always been in the 60-70% for his height and 50%...
  15. Mom2Will
    My son was recently diagnosed with celiac. Well, we are still waiting for our appt. with the gastro and possible biopsy. But his blood work came back with values over 160 for both tTG and anti gliadin IGA as well as he's had unexplained gastro symptoms for 5 years so I'm resigned to the fact that he most likely has celiac disease. It goes without saying...
  16. Mom2Will
    Oh, and another question. I listed that they gave me his tTG results as 168 with 0-19 being normal. Another result I had written down (not sure if the name of the test is spelled correctly) but I have down that they tested for gliadin IGA and it came back as 162 with normal being 0-19. Can anyone tell me what this gliadin IGA test means? Thanks! Melissa
  17. Mom2Will
    It's definitely the anxiety about the procedure that I'm worried about. He sounds like your daughter and is very sensitive to everything like that. He will not watch a show that has blood in it of any kind - he won't even watch kid shows if someone gets injured. Getting a strep test is awful. One doctor thought she was being nice by showing him on herself...
  18. Mom2Will
    Well, he's only been completely gluten free for 2 days. It's not like going back on gluten will really make any difference at this point. I guess that if the GI dr. really wants to do more tests and has a compelling reason why he wants them then I would want them to be as accurate as possible. I've read that there are a few things that can give a false...
  19. Mom2Will
    It's just so confusing when you get conflicting information. As I said earlier, the pediatrician said he should stop eating gluten now and that it shouldn't matter for a biopsy if one was ordered because it would be too soon for his intestines to heal. (There is 11 days between when he started going gluten free and when he will see the gastro. I don't...
  20. Mom2Will
    Thanks for the reply. I guess I'm not sure what the gastro will want in order the make the diagnosis. The pediatrician seemed positive that he does have celiac. Based on 5 years of symptoms like constant loose stools, recurrent stomach pains, canker sores, eczema, and a fairly high tTG test I'm convinced that he does have celiac. I'm a little reluctant...
  21. Mom2Will
    Ok, first time ever posting so I'll try to be clear with my question. My 8 yr old son has had gastro type symptoms for years. Loose stools for probably 5 years and abdominal pain/gas/bloating that has come and gone for the past several years. The dr. always dismissed the possibility of an intolerance because his growth pattern was always so good and steady...
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