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lizk

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Everything posted by lizk

  1. lizk

    ARCHIVED Photos Of Mild Dh

    lizk replied to lizk's topic in Dermatitis Herpetiformis

    Oh and I would say for the past 6 months I have been "itchy/scratchy" as well and have bumps on the back of my thighs that itch that I thought were ingrown hairs or something. The burning sensation you mention I don't think I've heard before and is what I feel sometimes because I have described it as almost feeling having a sunburn when it gets itchy. Thank...
  2. lizk

    ARCHIVED Photos Of Mild Dh

    lizk replied to lizk's topic in Dermatitis Herpetiformis

    I'm sorry you had such a tough time of it. Does your son have multiple "mosquito bite" looking lesions in one place? Or is it one here or there? I had some that were very tiny blistery looking things and lately I have had larger "bug bite" looking ones that are usually (not always) on matching sides of my body. They usually just present as one, but for example...
  3. lizk
    I found this link of what I would consider "mild" DH (except maybe the back photo, that looks kind of severe) and thought I would post because I've had a hard time finding photos that don't look pretty severe. Most photos of DH don't look like what I have (and I'm still not sure if I have DH), but these look very similar to what I have - especially the first...
  4. lizk
    Thanks for your advice! And thank you for reading my long post! I think I will try to make an appointment with a dermatologist.
  5. lizk
    I guess I am just mostly venting because I'm frustrated that I can't figure out what is wrong with me. Last fall I was having gastro issues (bloating, D, cramping) and also some skin issues - severly itchy bumps that would come and go. I went gluten-free (I realize now that was dumb before seeing a doctor) and the GI issues resolved almost completely except...
  6. lizk

    ARCHIVED How Tiny Can Dh Be?

    lizk replied to lizk's topic in Dermatitis Herpetiformis

    Thanks for your response! Sorry you are still itching but glad to hear it has improved and hope the progress continues. That is so interesting about lying down...can't say that I have noticed it but now that I think about it I really only lie down at bedtime. I usually watch tv either sitting in a chair or on the floor and don't really take naps except...
  7. lizk

    ARCHIVED How Tiny Can Dh Be?

    lizk replied to lizk's topic in Dermatitis Herpetiformis

    Thanks for your reply! They are usually red around them but maybe that is from scratching. And the old ones are purplish (pink/purple/brown??) sort of scar looking spots - all over my legs It is definitely worse at night. Sometimes itchy during the day, but not ever as bad as the nighttime. Good point about gluten-free for life. I think...
  8. lizk

    ARCHIVED How Tiny Can Dh Be?

    lizk replied to lizk's topic in Dermatitis Herpetiformis

    Thanks for your reply! The benadryl didn't make the bumps disappear at all, just seemed to temporarily stop the itching. They still itched the next day and I got another bumps on my arm the next day and one more this morning I knew about the iodine connection but have just read on here about salicylates! I eat a lot of foods with those and will check that...
  9. lizk
    I have just the tiniest bumps and they are not clusters but they itch like crazy! I have been gluten-free for about 3 months because I was having stomach issues (itching too, but at the time I didn't connect it to gluten). They are tiny, like pinpoint tiny but right now I have one on each shin, two or three on each thigh, and one on each side of my stomach...
  10. lizk
    Thanks for the reply! I hope you continue to feel better. You are so right about the flour shortcuts...I recently read somewhere (on here I think) that some restaurants will use it in scrambled eggs! I would never have thought to ask if the eggs have flour in them!
  11. lizk
    Thanks for the replies! I'll check out those sites. I don't have an iPhone but it looks like they have the same tool on just their regular website. The scanning thing is cool, though! I love that these sites let you track overall nutrition, not just calories.
  12. lizk
    I have been gluten-free for about 3 months, and I am generally ok with the diet in terms of being able to stick to it and not feeling deprived, etc. I ate pretty healthy before going gluten-free so I ate a lot of whole foods anyway. There is definitely still some adjusting to do, but overall I feel ok with it. However, I feel like I struggle with getting...
  13. lizk
    So interesting to know that this has happened to others. I am so curious if that's what I had back then...looking at the photos of DH makes me think it was. Thanks for the replies!
  14. lizk
    My biggies were seafood and carageenan and eggs and dairy. I grew to hate egg whites with a passion (and still do, btw).
  15. lizk
    Thanks for the list squirmingitch! This is a good point, too. I think what I'll do for now is keep a list of high iodine foods just so I am aware (I had no idea about some of those!) and that way if I get any bumps I can look in my food journal to see if there is a connection. It will help me be more aware and I can keep iodine intake sort of balanced...
  16. lizk
    A really weird thing that I happened to remember recently is that several YEARS ago - I'm talking like 6 years ago - I had a patch of tiny bumps on my feet and it was ridiculously itchy. Nothing would help - I had no idea what it was and tried cortisone cream, calamine lotion, that spray stuff for athlete's foot (had never had that before so I didn't know...
  17. lizk
    Thanks for the replies! It is all very helpful to hear your experiences while I am still trying to figure all this stuff out. I just looked up "foods with iodine" because I thought it was just salt but I guess not! I found on the list cranberries, yogurt (which I don't eat anyway, I'm DF for now), navy beans, strawberries, and potatoes! I eat a lot of potatoes...
  18. lizk
    I am not yet diagnosed and have an appointment with a GI next month. I cut out gluten on my own because of some symptoms I was having and nearly all of my symptoms disappeared with the exception of soft/loose stools which is why I decided to see the GI to be sure it isn't something else. I know at this point since I am gluten-free any blood tests will be...
  19. lizk
    Thanks for your reply! That is a great point...I don't have any reason for an official dx and I am quite sure no matter what happens I will remain gluten-free simply because I know it makes me feel better.
  20. lizk
    Thank you basilicious! I have heard about some people taking apple cider vinegar as well but never quite knew what it was for. I'll look into it and give it a try - I'm up for anything especially if it is a natural way to help balance things out. In the meantime, I will happily have a glass of wine with dinner! I am really limiting processed foods too...
  21. lizk
    Beachbirdie and Mushroom - thank you both for your replies! It is so helpful to have someone to bounce thoughts off of when you really have no idea what to do. I have tried to read as much as I can on here but it can feel overwhelming so I decided just to post my specific question/thoughts and see what replies I would get. It is very helpful to hear that...
  22. lizk
    Hello, I'm new here but have found so much helpful information already. I'll try to keep my story short. Last fall I started having gastro symptoms - bloating, diarrhea/loose stools, stomach cramps. During that time I also had frequent and sometimes severe headaches and also fatigue. Based on the limited amount I knew about gluten, I decided to try eliminating...
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