tama-chan
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Latest Celiac Disease News & Research:
Everything posted by tama-chan
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ARCHIVED My Personal Experience Guide
tama-chan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I wrote down my current experiences and am bringing this to my doctors on Wednesday, but wanted to show you guys to see if you could get some idea as to what is going on with me. I am scehduled for an endoscopy in Oct 4th, but I cannot wait that long to help myself. Thanks everyone for listening!: Problem: Painful intestinal problems, from the upper abdominals... -
ARCHIVED Please Help Me >_<
tama-chan replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow! Your type of pain and circumstance almost sounds identical to mine! Okay, I guess I misunderstood before; I thought 2-5 biopsy's meant that I would do a endoscopy 5 times. So I believe they are going to check all the small intestines as best they can... As for the pain in morning, I do pass a lot of excess gas through out the day, and especially in... -
ARCHIVED Please Help Me >_<
tama-chan replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh wow, 2 to 5 Biopsys? Okay I will try, but I'm pretty sure my doctor will not let me. They are already angry at me because I continue to pester them to get this test done. I continue to eat gluten then I guess... I just hope they don't take false information or anything. Thanks again! -
ARCHIVED Please Help Me >_<
tama-chan replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My specialist called me up and said that they will schedule me for a small intestinal Biospy (or endoscopy). Why they didn't do this before is beyond me, and from what they told me before, the upper GI tract scan is the same (which I know now is NOT). I can't get in until Oct 4th, but thats life I guess. Could someone tell me if they do this small intestine... -
ARCHIVED Please Help Me >_<
tama-chan replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I forgot to mention another detailed time of pain that happens to me: As soon as I wake in the morning (doesn't matter what time it is), for about 20 minutes I'll have the worst pain in my lower gut (as bad as when bending over/kneeling down). Does anyone know why this could be? Have any of you who has celiac been in pain as soon as you get up before you... -
ARCHIVED Please Help Me >_<
tama-chan replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks again everyone, you have been a big help. Yes, my doctor will remain namless but he is only person I ever met who treated me like dirt, and didn't believe anything I say. I went in with an open mind like everyone else and a smile, but it didn't help. I guess the main thing that ticks me off is if they can't find the problem by testing means,... -
ARCHIVED Please Help Me >_<
tama-chan replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I haven't heard of Enterolab before, but they gave me the "Celiac Plus" test when I had my bloodwork taken. Thats when they couldn't determine if I had it or not, but I had the gene for celiac disease. About the diet, I did try for seven days (thats what was prescribed by my doctor) but didn't feel an improvement. I even inquired about some people needing... -
ARCHIVED Please Help Me >_<
tama-chan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey everyone, I haven't posted in a while to try and sort some other things out. I'm still having pain everyday, and am trying to figure out if I do indeed have Celiac disease. After they ran my blood test again at the specialist, he informed me that I do have the right gene that most celiacs have. But he said my blood work was "unlikely" or "undertermined... -
ARCHIVED Soluble Fiber Powder/pills
tama-chan posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I'm curious about this one: Could you still take souluble fiber only pills/powder in any form to help constipation/excess mucus build up? Or do they all have some sort of gluten/wheat chemical in it? If I can have one of these, is there a popular brand that works better then others? Thanks! -
ARCHIVED Gluten Free Items
tama-chan posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Could someone tell me a some sure-brand names of Gluten free soaps, shampoo's and toothpaste? I read on another board that all these things could have a possible gluten contamination, so I want to rule them out. (Possibly an item I can find in a regular store, or health food store; nothing online please). Thank you! -
ARCHIVED Safe Foods...
tama-chan posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Hello again! While trying to stay celiac free (though my doctors office wont tell me if I was positive or negative yet, even though they have the results) I decided to play it safe for weeks, and eat nothing but rice, potatos, some meats and fruits/vegetables. I'd like to start trying a couple other things, but I'm not sure if they contain gluten or... -
ARCHIVED Celiac Plus Testing...
tama-chan replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the info everyone! I had been eating wheat/guten prior to the testing, and did not stop eating it until right after the test. I'm not sure which lab it's getting sent to... thats why I'm kind of worried that they aren't going to understand that it's the "Full Celiac Plus" test, and may mess it up. I sure hope not! -
ARCHIVED Celiac Plus Testing...
tama-chan replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hmmm... nobody? -
ARCHIVED Celiac Plus Testing...
tama-chan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello everyone, While trying to sort out my abdominal pain/gas/constipation issues, my specialist finally approved for me to take the Celiac test. I recieved a paper in the mail a short while ago that has all the information for the "Celiac Plus" test. I was told prior to the testing by my regular doctor and nutrisionist that you need to have gluten... -
ARCHIVED Looking For Help
tama-chan replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks again everyone, I'm going to call in with my doctor first to try the blood work. This has been going on for months now, and it's just getting worse and worse, so I hope this can give me some relief. I always assumed before that celiac was more genetic, and found it odd that I could have this because both family lines in my blood have never had digestive... -
ARCHIVED Looking For Help
tama-chan replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for all the information everyone! I am going to try this out and see if it helps. Would I see a change in several days if I was on the diet? Or does it take longer? -
ARCHIVED Looking For Help
tama-chan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello everyone, I’m a 20 year old male with some serious problems. I’ve had constant constipation, abdominal pain and excess gas (that will NOT come out) for months and months now. Each month getting worse, and every other hour I usually have painful problems. I’ve checked with my doctor on doing these: High fiber diets Gas pills (Gas X, Belladonna, Hyos...