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cd42

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cd42

  1. cd42
    Just so you know you are not alone--my daughter is in a similar situation. She has been gluten-free for nearly a year, but her ttG levels remain pretty much unchanged from her original diagnosis. In our case, her symptoms went away almost immediately on the gluten-free diet, but the numbers fail to come down (still at 120). While I suppose there could...
  2. cd42
    My 5 y.o. was diagnosed last summer with Celiac and as far as we know hasn't been exposed to gluten since that time (although her ttg remains high). Tonight she was extremely exhausted and told me that she didn't feel like walking, barely touched her food and just put herself to bed--she seems sick, but no fever, no runny nose, no symptoms, but extremely...
  3. cd42
    Thanks for your reply. I'd be interested in hearing how your son's tests come out--best of luck!
  4. cd42
    As far as we know the level has not come down at all, but you are correct it turns out that the levels went from >123 to >146 to exactly 126 in three consecutive tests. I guess we don't know whether >146 is actually higher than >123, so it is possible that it is coming down, but doing so slowly.
  5. cd42
    My 5 year old grew 3+ inches in 6 months and shot clear up the growth chart--we were all amazed.
  6. cd42
    Not a single reply....should I take this to mean typically children don't have a ttg test during the recovery period? I'd really be interested in just hearing others experiences with TTG numbers after 6 months on a gluten-free diet.
  7. cd42
    My 5 y.o. daughter was diagnosed last summer with Celiac Disease (both anti-TTG and biopsy positive) and has been on a gluten-free diet since. Her symptoms, which were fairly mild, went away quickly. She also developed anemia and that recovered within 6 months on the diet. Her serum ttg remains high after 9 months and hasn't come down at all (125 at last...
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