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jnh380

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  1. I am frustrated. I went to the Ear Nose THroat doc today who basically said I need to see and endocrinologist for this type of stuff. I wrote my primary care doc asking for the t3 and t4 tests and she said that because my TSH was fine 5 months ago that there is no reason to order these new tests. I wrote her back a long email telling her how things have...
  2. This is a great statement. I have been struggling with this a lot. It boils down to the notion of whether or not one believes that the mind can cause such severe psychosomatic pain. I mean, can a fear or worry have such a profound effect on the physical state as to cause damage to the intestines and make us feel all the symptoms of celiac? Or does one believe...
  3. I believe that my biggest symptom is anxiety, just like the other posters on this thread. I have been an anxious and worried personality my whole life, but I had gotten it under control and was really doiing well, emotionally and mentally. Then about two years ago I started to feel not quite right, after 6-8 months it developed into a full blown panic/anixety...
  4. jnh380

    ARCHIVED Feeling Low

    Yes, for me the emotional symptoms were and remain the most powerful. After the first 2 weeks I felt really good and felt like I was making strides. Then it hit me again and i felt so dissapointed and discouraged, and I went into a deeper hole than i was even before i found out. It is a roller coaster ride, i would say even now 5 months into the diet it is...
  5. I have only had the TSH level checked, which came back normal range. But I have read that does not really mean anything and the full tests should be done. Thanks for all the responses. I just get this feeling from kaiser that they know better than me what I should be suspicious about, and that the TSH was normal there is no reason to go any farther. I really...
  6. Quote from: Open Original Shared Link "Symptoms of Graves disease are those of hyperthyroidism and may include anxiety, restlessness, irritability, emotional instability, inability to concentrate, fatigue, muscle weakness or cramps, heat intolerance, and increased sweating. Periodic paralysis with low potassium may occur in men with hyperthyroidism who...
  7. I was recently diagnosed with Celiac, but my first indication anything was wrong was 6 years ago when I saw a GI doc about elevation ALT and Bilirubin tests. I was diagnosed with Gilbert's syndrome, which is a naturally occuring elevation Bilirubin. Now that I know I have celiac I think this was a precursor or indication of something not quite right about...
  8. Hi Marie, Just wanted to say that your post echoes my own experience very closely. I am now exactly 3 months into it and have been struggling with a lot of ups and downs. I now know exaclty what a glutening reaction is, but most times cannot pinpoint what it was I ate. I know I should be hypervigilant and only eat things I know are ok, but it is really...
  9. Hi J! Just wanted to say hi, I haven't been on the forum too much lately. How are you doing? Feeling any better since your last post?

  10. I used to play volleyball and would love to get back to that. i tore my ACL 2 months ago so unfortunately I can't be very active. I just need to keep telling myself that this is a disease with very powerful symptoms. I have to disconnect the ill feelings with the negative thoughts. I have to accept that this disease has caused a lot of pain and will take...
  11. Hi guys, its been about a month since I posted this topic. My experience since than has been a lot of ups and downs. Today is a bad day and I needed to share. I have had many good days this last month and have been trying really hard to watch my food. I have found that dairy is really bad for me right now, but have caved in a few times and had some ice cream...
  12. I didn't even think of it until now, but I had physical therapy 18 months ago for upper back & neck pain. Just believed it was bad posture, but now looking back and at the same time I developed neuropathy in my fingers it now all makes sense... BTW i am now 33 so this started when I was 31.
  13. Ok, just need to vent. I am currently with Kaiser and I my history of this diagnosis is as follows: 1. Primary doc orders TTG test, comes back positive. She told me it is possible celiac, tells me to avoid gluten and refers me to GI department. 2. GI doc calls me for 5 minute phone call and orders a endoscopy. 3. Different GI doc performs endoscopy, tells...
  14. Sounds about right. I was feeling much better 2 weeks ago, then it slowly crept back. Now I am looking into the other foods, such as milk, cheese, coffee, nuts, etc. to see if removing any of them helps me.
  15. My Vitamin D was on the very bottom of the normal range. Have been taking supplements Just started taking a probiotic I think I am, but it might not be as filling as before. Lots of salads and fruits. I have kept one since April 17th, the day after my endoscopy. I know they are there, and I guess its a little selfish to expect people to...
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