mom2

I will mention Hashimoto's specifically at her next follow-up. She doesn't seem to have any throat issues that I can tell, but if it's an easy test, it's worth checking just in case... Thanks!

Thanks for sharing your son's history. It's comforting to know others are in a similar situation. I was, and still am, hoping that this Celiac diagnosis would lead to a pick up in growth. We haven't been referred to an endocrinologist yet. It seems like every other possibility needs to be ruled out before a growth hormone issue will be diagnosed, so I...

Thanks for mentioning that. The GI did say that it could be her thyroid, but that he would have expected her to be just short (not both short and underweight). Not sure why that would be? She's 4 1/2 and still hasn't made it to 30 lbs yet. Hopefully soon though. She's just tiny overall. I'm pretty sure he will check her thyroid if she hasn't started...

Thank you both for your replies. My daughter does look healthier overall (better color, a little more fleshy) even though she's tiny. Hopefully a growth spurt is just around the corner. I think I will wait and see what happens over the next few months, but I will bring up the Casein allergy at her next appointment just in case. She doesn't seem to have...

My 4 year old daughter received a positive Celiac diagnosis 6 months ago (via TTG blood test and scope/biopsy). We originally went to the Pediatrician because of her severe behavioural and sensitivity issues (she was constantly screaming & unhappy, always tired, needed to be carried, and very small for her age). She originally received two TTG tests...

The GI who did my almost-4 y/o daughter's scope also said everything "looked normal" during the scope, but the biopsy confirmed she was positive for Celiac (she also had a pretty high positive blood result). We were told to call in 2 weeks for the biopsy results, which is how long we had to wait. I'm sure they had the results earlier, but I decided to wait...

Thanks for the encouragement! I love the idea of taking a cooking class. I bet I might able to find a gluten-free one around here (I'm fortunate to live in a very health conscious city).

Thanks Cara. That's a good point about testing the rest of the family. I'll get the blood work done for the rest of us this week. That's funny about having tacos for dinner 3 times the first week your son was diagnosed. I have visions of feeding my daugher rice for breakfast, lunch and dinner. It's going to be a big adjustment for me, but I know it will...

I just wanted to post an update. We went for the scope/biopsy a couple of weeks ago. The GI performing the scope said everything looked good/normal, but the biopsy results would be ready in a couple of weeks. I just got a call, and even though things looked normal, the GI says her biopsy was positive for Celiac Disease and we are to start on the diet right...

That's too bad your son has to wait 7 months. Are you in a smaller town or up north? We're also in Canada, but in Vancouver. Thankfully my daughter (almost 4) only had to wait about a month to see a pediatric GI. She had a TTG of 108 and then 79 when re-tested. She had the biopsy a couple of weeks ago. They said things looked "normal" during the scope...

Although I doubt the GI will give a formal diagnosis with a negative biopsy, I'm pretty sure her pediatrician will recommend we try going gluten-free whatever the outcome, to see if it helps. My husband wants to go gluten-free regardless as we are at the point of trying anything if it will help her to be a happier little girl. That's great to hear you had...

Thanks very much for the information. I guess if the biopsy is negative, I will ask for those other specific celiac blood tests. The GI said he would be taking 5 samples, so hopefully if there is damage he'll get the right spot.

Hi - I don't know much about Celiac disease or testing for Celiac disease, so I'm hoping someone here might be able to shed some light for me or have a similar experience. My almost 4 yr old daughter was referred to a Pediatrician for being highly sensitive and irritable. Aside from being irritable, she has always been unusually small since around 6 months...