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banjos

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  1. hello! i am no expert but i believe you can have celiac with the one positive test. i had the same mildly positive blood test. my endoscopy showed no signs of celiac according to my dr's. my dr is saying that i don't have celiac but IBS and that i'm lactose intolerant. which is bizarre because i have no problems with dairy. BUT i have seen all of my seemingly...
  2. i just want to second the idea that the endoscopy is not the final word. i had a mildly positive blood test and a negative endoscopy yet it is CLEAR that i should not consume gluten. i am on my third month of being gluten free and have consumed gluten twice and have gotten so very ill. my dr. doesn't considered me celiac (i got the IBS diagnosis with...
  3. hi. i don't have much to add in terms of advice but i wanted to say that one of my symptoms from consuming gluten was/is anxiety (i was taking xanax prior to stopping gluten and was told to start lexapro but never did). i'm starting my 3rd month of being gluten free and while it has taken some time to see a resolve of my anxiety (stomach issues, migraines...
  4. hi there. i had the blood test panel done and it came back mildly positive but my endoscopy was negative. i have responded so well to being gluten free and have been glutened twice since going gluten-free and it is awful. my symptoms last about three days as well. so basically for me i am not diagnosed as having celiac but i know that i simply cannot...
  5. hello! I was given the blood panel for celiac and one of the test came back "mildly positive" and had an endoscopy and it came back negative (everything looked fine). but i wanted to post an update on myself since going off of gluten thinking maybe it could help someone else. before having the blood test i had all of these seemingly unrelated symptoms...
  6. thanks everyone. i guess i don't *need* a solid diagnosis. the only thing that concerns me is that celiac is genetic and i do have a son. although he eats a gluten full diet and has no problems that would warrant concern. part of me wanted them to say yes, it's positive because then it makes it a little more real. but i am absolutely going to remain gluten...
  7. just spoke to my dr's nurse. and i have to say i'm a little frustrated. they said that based on my endoscopy i am probably negative for celiac (which is fine if i completely believed them). she said that i basically have ibs and shouldn't eat gluten OR dairy. obviously, i need to talk to my dr. i also asked for them to send me a the diagnostic report. ...
  8. i'm curious if it is possible to have scalloping yet the biopsy be completely normal? has anyone had that experience?
  9. just had my endoscopy earlier today. wasn't as bad as i thought it would be. i'm still a little loopy and tired but i feel ok. i got the initial results that say: 1. irregular z line 2 mild scalloping of the mucosal folds in the second portion of the duodenum - biopsied they said i need to await pathology results and wouldn't confirm or deny celiac...
  10. thank you all for your replies. it's making more sense now. i've decided to go ahead and get the biopsy. i have it scheduled for next week. i also think that regardless of the results i will be going gluten free.
  11. thanks for your reply! i understand that you can't have the endo once gluten free or rather you would have to go back to eating gluten to get the correct results from the endo. but what i mean is that i would go gluten free to see how i feel - if symptoms subside then i would remain on the gluten free diet. but you are pretty much saying that even the...
  12. the only time i was ever off gluten was for a week when i did this clean eating cleanse (i basically ate protein, veggies, fruit) no dairy no bread. i do actually remember feeling kinda crappy for the first two days but then felt amazing the rest of the week. (ha! maybe that should be a good indicator!) but then went back to my normal eating after that. i...
  13. oh and i just talked to my dr.'s nurse and she said the test that was weak positive was the Deamidated Gliadin IgA. i have a 21 and 19 or less is considered negative. is this a pretty sensitive test?
  14. thank you for the replies! my thinking is that regardless of the endoscope i will go gluten free for 3 months and see how i do. i feel like i've read so many experiences where people have had the endoscope and it turns out negative yet they go gluten free and feel so much better. i almost feel like the weak positive blood test and my symptoms are enough...
  15. hi everyone. i am new to all of this and looking for a little advice. i was tested for celiac, my dr. said it was a three panel test and two were negative but one was mildly positive. she said it was a 21 and negative is 19 and below. i've been searching the forum for others experiences with having tests come back as mildly positive or weakly positive. most...
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