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Kittenfire

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Latest Celiac Disease News & Research:

Everything posted by Kittenfire

  1. Kittenfire
    After reading all of these comments, I definitely did not have a celiac panel done. No anti-gliadin ABS or DGP. My results were just middle of the range, and negative. Doctor said it was inconclusive b/c I wasn't consuming gluten, and it therefore didn't mean I did or did not have celiac. So, they proceeded with biopsy anyway. I haven't had the gene testing...
  2. Kittenfire
    Oh gosh, thanks so much for this. I do not wish to reintroduce gluten, based on what happened. However, perhaps an allergist will be able to help me. I would really love an official diagnosis, b/c all this shrugging is really just frustrating. I am sure loads of others have gone through this already, but man....It's such an emotional roller coaster! Several...
  3. Kittenfire
    Thanks for this info. I had stool tests (the 72 hr one), and the results were in, but nothing shows on my online record. I feel so stupid that I'm not sure what this was for. I thought it was for parasites? So do I seek out another doctor? What would you do from here? Also sorry to ask this, but I would need another rash in order to get a DH diagnosis...
  4. Kittenfire
    The blood work that was done was iron, and other vitamins (B6, 12, folate, calcium, zinc), ANA (doc thought it was Sjogrens), SED, CBC, TSH, Amylase, electrolytes, hepatic function panel, pancreatic elastase. After I was gluten-free, they tested for IgA and TTG. Both came back "inconclusive" said my doctor. The rates were mid-range and I wasn't consuming...
  5. Kittenfire
    When I reintroduced the gluten a couple weeks ago, I had the same symptoms that I had right before that huge outbreak in September, complete with itchy mouth and the left side of my face (same spot as before) feeling sort of funny. Really hard to describe the exact feeling. I had bumps and a lot of redness around my mouth, and then my chin/lower left side...
  6. Kittenfire
    So sorry - I just realized DH is derm herpeformis. They did not do any testing for it. They said it was a contact allergen, so gave me a steroid cream to put on it. When I put it on, the burning got so much worse. I ended up putting cold compresses on my face to get the burn to cool down. When it spread to my neck, I went a 2nd time. Doc said benadryl...
  7. Kittenfire
    Whoa, really? (I'm actually also in Boston and I thought my doc was knowledgeable, as he's supposed to be a specialist in the area of celiac. I'm not really sure how.) You poor dear - you must've felt awful for those 4 months! Since my doc didn't want to see me for 2 more months, is that to see how I improve on a gluten-free diet? Would they retest...
  8. Kittenfire
    Thanks so much for your reply. Given the reactions I've had, I simply don't think that'd be possible. What is DH?
  9. Kittenfire
    Hi there. I have a long post I need help with. After eating primal for about a year (all of 2011), this past December I had a lot of gluten while baking for a party (much more than usual. To define usual, this was pretty low levels of gluten). Then, I went to said party, had several cookies and a cupcake (and noodles). I ended up getting sick, and had...
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