n1c0le

Thanks so much IrishHeart...as if I needed any more evidence that I have Celiac... :X

Thanks everyone! Wow, so many symptoms at young ages. I too went to physical therapy for 4 months for suspected symmetrical knee sprains. Then my neuropathy kicked in and that's what lead me back to what doctors have suggested to me many times - celiac!

Hey guys, I've been down a long road to diagnosis lately. Curious if these few specific symptoms might be related. I frequently wake up in the middle of the night with my heart POUNDING, but last night it pounded all night and still is this morning as I wake up in bed. My skin is flushed red all over and as usual parts of me are numb and tingling. Sound...

Hey everyone! I'm curious at what age everyone experienced neuropathy, joint, and or muscle pain. I'm 23 years old and my doctors and I suspect Celiac, however my doctor recently told me these symptoms wouldn't come out until further down the road in undiagnosed Celiac! Was this true for you? Did you experience these symptoms at a younger age? Did...

Thanks so much for your response. I feel very strongly that Celiac is the likely cause of all of this - I've got a lot to point to that supports my theory - I don't think I could ask for MORE evidence. However, before I commit to gluten-free I want to do everything I can to get an official diagnosis. I am a pescetarian (eat fish but not other meats), suspected...

Hey guys, So here's the update. The doctor didn't feel that an endoscopy was necessary or would be helpful. He performed blood work - since new symptoms have developed and i haven't had blood work in over a year. We got some results immediately, which were perfectly normal. We're getting the rest by Friday. He said he doesn't think it's Celiac, although...

Thanks for your response! If my biopsy comes back negative I will discuss options with my doctor. He is amazing and I know he'll give me the right advice, and tell me to try gluten-free once we've tried everything to get a DX. I think the blood test was thorough because I trust him because he's a truly great doctor, but I can't prove it. I'll make a point...

Hey! Its so crazy that things I've regarded as normal for years, like the dizziness and black spotted vision, can be potentially explained and fixed by one thing. Yes, doctors have suspected autoimmune but my bloodwork has always been normal. They considered celiac and one other autoimmune that I forget the name of now. Every test has always been negative...

I should also mention these details: - dry itchy scalp - dry itchy eyes - lack of saliva despite being hydrated - dizziness when getting up, vision will get black and splotchy from the edges and clear when dizziness passes - foggy brained, memory loss, can't focus - fatigue, exhaustion, but wake up in the night - pretty extreme "growing pains" in legs...

Thanks so much gluten-free lover! I too have been called a hypochondriac for years (doesn't help that I have OCD to support their suspicions), so it feels great to know I'm not alone and remember that this is all real.

I'm here to share my story! I'm 23 years old, and I've suffered from an incredible amount of medical issues since infancy - all UNEXPLAINED or chocked up to hyper-sensitivity, being slow-to-heal, or making things up in my head due to anxiety. How silly! Here's the list: - bad reaction to milk - given soy formula as a baby - suspected lactose intolerance...