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beebee07

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by beebee07

  1. beebee07
    Glad to hear your daughter is much better MitziG. I have a son and daughter aged 7 and nearly 5. I believe I need to get them tested too now that I have a definite diagnosis.
  2. beebee07
    The Endo said they weren't sure why I was hyperthyroid so wanted to see if those levels mormalised. He wondered if a CAT scan I had done in first week of May was the cause, they injected radioactive tracer, Iodine I believe. These latest results are 4 - 6 weeks since then so I don't know really.
  3. beebee07
    So it seems I have been posting a lot in the last few days but since my "official" diagnosis my brain is ticking over with a lot of questions...! My B12 level was 377 . Normal is considered 150 - 800. My doc said mine was perfectly normal. I am wondering if it would do any harm to take sublingual b12. At the moment I am not taking any supplements at all...
  4. beebee07
    Hi momof2boyz, I don't vomit just horrendous nausea followed by breathing issues and then these sort of seizures most mornings upon waking between 5-7am. Going to a Neurologist later today to rule out anything neurological. I am pretty confident it is not. Thanks for your reply.
  5. beebee07
    I have only seen one record of T3 recently, taken on 8th June which was 7.2 normal range is (4-6.8). Last TSH was less than 0.03 (0.4 -3.8) and T4 was 25.3 (12.8-20.4) so I guess those T levels are not considered abnormal enough yet to address. I have to keep re-testing every fortnight . Thanks for responding. It's nice to not feel so alone with all this
  6. beebee07
    Tell me about it! Apparently my TSH is undectable but T4 is 25 (normal range high is 20) and they don't know why, I.e.I don't have Graves or a nodule on my thyroid.....rather frustrating! I have to keep doing bloods every two weeks to see if that result changes and if it gets worse then they will do something. I guess that T4 isn't high enough above normal...
  7. beebee07
    P.s. Sorry to hear about your daughter, I hope she is well now.
  8. beebee07
    Thanks MItziG for your reply, I really appreciate it. I had the Vit B12 yesterday and apparently my test result was 377 when the normal range is 150 - 800. Doc felt that was middle of the range so nothing to be concerned about. I will look into those other vitamin tests, I think most of them have been done and came back normal. Those seizure type...
  9. beebee07
    Well, I would like to say my health has improved in the three or so weeks I have been gluten free but sadly that has not been the case for me. Multiple trips since registering with this forum about three weeks ago to the doctor and ER dept have seen me sent to an Endocrinologist and a recommendation to see a Neurologist. Why? Because my morning nausea attacks...
  10. beebee07
    I am glad I am not alone. I wake up every morning between 5-6am with it and it takes a long time to go away. I wonder why it happens?
  11. beebee07
    I was wondering if this has been an issue for anyone else? I started having debilitating morning nausea symptoms about 3 months ago before being tested. This morning it hit me again, it is like morning sickness but of course I am not pregnant. Some mornings it has been so bad I have been very dehydrated with it and been to the ER about 4 times before my positive...
  12. beebee07
    Can the withdrawl flare old symptoms? Thanks squirmingitch.
  13. beebee07
    Thanks for the welcomes I think I very well may be grasping at straws too MistyRG. I don't know wether mine are strong or weak positives. I asked the doctor for the numbers and he fobbed me off. I have my endoscopy this Friday but have been gluten free for a week on the recommendation of the doctor who gave me my test results. I am very conflicted about...
  14. beebee07
    Thanks for your response. From what I understand a false tTG positive could be due to other auto immune conditions or heart and liver issues. Given I had all my thyroid bloods done, liver (plus three scans of the liver: ct, mri and ultra sound) and pretty much every blood test under then sun, I would find it hard to believe the false positive for the tTG...
  15. beebee07
    Thank you for the feedback. This is all very very new to me. Much appreciated
  16. beebee07
    I have just had my EMA and tTG come back positive a week ago. I am scheduled for an endoscopy at the end of this week. How likely is it that my two test results are false positives? I asked the hospital physician if that could be the case and he said no, there is a 90 something percent accurate result with those two tests. However, when my GP received the...
  17. beebee07
    I have been getting progressively sicker for many many months culminating in being hospitalised four times over the past month and being bed-ridden for two months. The hospital doctors and my General Practioner did every test and scan imaginable. Finally last Monday (28th May) I got a call from the hospital physician to say that the EMA and tTG blood results...
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