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CarolynA

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  1. I want to thank all of you so much!! I have been very worried about this, and now I feel much more positive. I may just try going off the gluten for a couple of months to see if it makes a difference before stopping soy and corn as well. Carolyn
  2. Thanks everyone for the replies. I have been most worried about the neuropathy pain. It is good to hear that healing happens, even if it is slow. I had my B12 tested in 2010, and it was 951 (high). Do you think I should go off soy and corn as well, or is just going off gluten enough for now? I don't eat dairy anyway, except for occasional pizza...
  3. Last year, I posted to this forum because I thought I had celiac, but after my tests turned out negative, I went back to my regular diet and forgot about gluten. However, the neuropathy in my feet has been getting worse, and my doctor increased my levothyroxine dosage last summer. I have turned to acupuncture in an attempt to get some help. For a few weeks...
  4. I just wanted to post an update on my progress over the past year. After my tests turned out negative, I went back to my regular diet and forgot about gluten. However, the neuropathy in my feet has been getting worse, and my doctor increased my levothyroxine dosage last summer. I have turned to acupuncture in an attempt to get some help. For a few weeks...
  5. Well, I just got my blood results back: IgA 214 reference range: 68-378 TTG 8 0-19 IgG 3 0-19 The nurse last week told me they were doing the full panel, and I saw 5 tests on the order. When I asked about that today, the nurse told me they only do the others if the first 3 are positive...
  6. His nurse assured me it was the full panel. Your list had 6 items and theirs had 5. I asked specifically about DGP, and she said it was on the list. I will go into the office next and get a copy of the results and post.
  7. OK, I will wait to start gluten-free, but I am sure all of you know that is extremely difficult because I want to feel better. I was in somewhat of a dilemma, though, because my husband made a beautiful, large, tabbouleh salad yesterday, and I didn't have the heart to throw it away. So, now, dilemma is solved. I will eat and try to be patient. Thanks...
  8. I just wanted to give you an update that the stool sample was negative for C.Diff, parasites, and WBC. The GI doc did agree to the celiac panel, and I just got back from the lab. I was feeling much better yesterday and thought it was resolving. However, today I had stomach cramps all morning. The doctor said I should now go gluten-free, but it will take...
  9. I read both of the links from Squirmingitch and IrishHeart. I was especially impressed by the Cleveland Clinic's advice that anyone with irritable bowel and and thyroid disease should be tested. All of you have certainly boosted my knowledge level and confidence! I just called both my internist and my GI doc and left messages insisting on the blood tests...
  10. Dear squirmingitch, the doctor wants to test me for C. Diff., parasites, and fecal WBC before proceeding further. He seems sure I have irritable bowel instead of celiac only because celiac is much more rare. He wants me to take Metamucil and a probiotic, Align, in the meantime to see if that helps because he said I could be "out of balance." He also said...
  11. Thank you so much!! I have an appointment this afternoon with my GI doc. I printed out your list and will tell him to order all of them. Also, while I am there, I will get the old results. I will look for my thyroid labs later, but I know the doctor has only been checking TSH lately. Last month it was 4 and he just bumped up my levothyroxine from ...
  12. Thank you for asking, and, in fact, I had forgotten about it. I had a colonoscopy at that time because I was anemic. The doctor found gastritis which was causing the anemia and tested for celiac, but the test was negative. I was not concerned and assumed that the testing was just routine. I had had some bouts of "irritable bowel", but it would always resolve...
  13. I am a 62 year old woman who has been having severe diarrhea and stomach cramps for 2 weeks. The diarrhea usually wakes me up at night and I go from 2 to 4 times during the night, then a couple of times in the morning with stomach cramps for a long time afterward. I was tested for celiac about 8 years ago with negative results, and I also had a colonoscopy...
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