Bluemoments9

My daughter just turned 2 a week ago. She was a FTT baby from 6 mos on and it wasn't until we determined last August that she either has a severe gluten allergy or Celiac that she began to slowly gain weight. The endoscopy and bloodwork we had done at 12mos both came back negative (she also hadn't had very much gluten in her life yet though) but she is...

I don't have an answer for you but we have had similar issues here. My daughter is 15 mos old and for the last few months has also had absent seizure like behavior. She had an EEG done last week (we don't have results yet) and was supposed to have had her MRI Monday but she was sick so we have to reschedule. We have done testing for Celiac and while we...

I will try to keep this post from being very long but I also feel like everything stems off each other so that will be hard. I really need some help though please! My 15 mos old was diagnosed several months ago as failure to thrive. We spent all summer doing many tests with a GI and did an endoscopy in July....GI was convinced she had Celiac. She...

My husband just picked up copies of her labs. Here is what they tested: Celiac Panel: Tissue Transglutaminase Antibody, IGA = <3 (<5 negative) Gliadin (deamidated) AB (IGA) = 4 (<20 antibody not detected) Immunoglobulin A= 34 (24-121 normal) Allergen Report: wheat, codfish, milk, egg white= allergen absent (<35) 72 hr Fecal...

Thank you for all the suggestions so far! After reading around on here I definitely do want copies of her labs because I know he did different tests but I don't know what they were nor do I know what her specific numbers were. I will get that and then post them. I don't believe I ever said anything to the GI about taking her off gluten and wheat for a...

I'm new to this board but I have had several friends suggest I post my daughter's story here and see what kind of suggestions anyone may have. I'm not really sure what my next step should be. Here is my daughter's story: My daughter is 14 mos and has been diagnosed as failure to thrive. She has always been petite, but she was at least maintaining "her...