Boys mom

HI- My sons GI doctor wants them to have lab work after getting an accidental gluten exposure to see if there is a "blip" in their blood levels (they have been wheat/gluten free among other foods for 4-6 months now aside from any accidental exposures.) We just confirmed they carry the celiac genes (one son 1 and the other both). Their diets are restricted...

I am still in the process of diagnosing my sons but I related to EVERYTHING you wrote from breastfeeding/milk intolerant newborn to current behavior problems in a 2+ year old. (I know how exhausted you are...and my husband doesn't deploy! Hats off to you!!) I'm sure your gut instinct is razor sharp and you are such a good mom for not settling for the first...

Thanks Miss Mellie! Yes, I read the dyes were used to analyze the biopsy too. Sorry I wasn't clear on that. So, do you think I could call and request that they use the dye? I guess it never hurts to ask.

Thank you SO much! Seriously brought tears to my eyes; I probably shouldn't need your pep talk but I totally did. Thank you!

Thank you!! I thougth it was wheat so great to know it's corn (which is also already out of our diets b/c my boys were reacting to whole corn, syrup, etc.) Didn't realize it was part of that family! Thanks!

I know--the GI didn't want me to put him back on a wheat diet. I probably have a false hope that they could still see some of the damage leftover. They are checking a couple other things w his scope (enzymes and signs of reflux) but my guess is that those will check out fine and then we will have to talk about doing another endoscopy paired with a long food...

My son had a scope/biopsies today and I just read something about using a die to better project the villi in the lab to get an accurate count. Is this familiar to anyone and do you think I can call on Monday and request the die or do you think that puts me on crazy-mom status and it's too late? My son has been off wheat/gluten for weeks now (except for xanthan...

Thank you Both SO much for your replies! Since I last posted, the older son has totally avoided gluten free oats so those are also "out." Your comment above reinforces me on that--thanks! As for the outside-the-box suggestions, thanks very much for your straight up candor! We ended up having an endoscopy done on the older child and are still waiting on...

I'm attempting to ask my questions without giving my whole story....we'll see if I can keep this short! I am SO appreciative of your time and advice! The backstory is diarrhea leading to weight loss (reflux, chronic colds, toddler complaining of eye pain...and a bunch of other things all my doctors want to call unrelated.) 1. My just turned 1-yo had a celiac...