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luv2bmykidsmom

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Everything posted by luv2bmykidsmom

  1. A quick update on my son's results and our gluten status. My son's biopsy came back negative and he isn't low IGA. Everything looked clear and good in the scope. They actually gave me pictures too. His GI is great and we both agreed that he doesn't need to go gluten free at this point. He's currently taking a medication to help with his appetite...
  2. My son's scope and biopsy all came back clear. Clear for celiac and anything else they were looking for. I'm relieved for him but still don't have answers as to his weight loss. We are going to neurology to get another MRI and check for hydrocephaly. At this point, I can't get a referral to the GI for me in our town. I had hoped that if he came back...
  3. "Celiac blood testing is not reliable in those who do not make normal quantities of IgA (or IgG). This test is run as a control to ensure the validity of the other testing. That your doctor did not realize this leaves me speechless." This too leaves me speechless. So we decided to get an appointment for me to a GI, one that has a clue about celiac....
  4. Lisa, thank you so much for the response! After re- reading my post I saw that my b12 should have been 396 not 96. Why is there any response in our tests? Why are they not all less than zero? Does the slight response mean anything? quote name='GottaSki' timestamp='1349919749' post='828872'] Welcome! The most glaring item in both your...
  5. I've got so much information floating around in my head; I'm not sure where to start. I'm trying to make this short but complete because I could really use some information from people who have BTDT. I went gluten free about two years ago and it made a world of difference for me. I have since discovered that there were many things that I didn't know...
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