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Oli's Mom

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Everything posted by Oli's Mom

  1. Oli's Mom
    Just to give an update on our six year old son. His antibody tests were negative, but he did have the Celiac gene. We discussed options with his GI (who believes he doesn't have Celiac based on his antibody tests). After some cajoling on my part, he agreed to have us go gluten free for six months. He would consider a diagnosis if my son gains adequate...
  2. Oli's Mom
    I posted in the babies/kids section, but I thought this could go here because genetics don't change with age! My son is six and we think he has multiple Celiac symptoms. His ttIG was low, so his GI wanted to drop the Celiac idea. We persisted and he decided to check him for the gene. I also looked at all of his old blood work and found a ttIG from Feb...
  3. Oli's Mom
    Okay. I just received his blood results. They say: HLA Class II, Locus DQB*, Allele 1 02:01 Results: Positive for HLA-DQA*05 and HLA-DQB*02 alleles HLA Class II, Locus DQB*, Allele 2 05:01 Patient has the HLA-DQ2 antigen, but does not have the HLA-DQB antigen HLA_DQB Genotyping Interpretation If less than 2 alleles are reported for a locus...
  4. Oli's Mom
    He had the test on Friday. It should take about two weeks to get back. We are also going to have his dad tested as he has always had bowel issues. If all tests are negative, we will give it a rest. If anything is positive, we will pursue a Celiac diagnosis! Thanks all for your great advice!
  5. Oli's Mom
    I just got off the phone with him. He wants to do HLA gene testing before we try the diet. I'm okay with this plan!
  6. Oli's Mom
    His GI just called and left a message saying everything is normal. He doesn't have Celiac. See you back in three months.
  7. Oli's Mom
    His IgG2 is 91. It's not quite as bad as his IgG1.
  8. Oli's Mom
    Thanks Lisa, You are so very helpful!!
  9. Oli's Mom
    Thanks so much! Total IgG is 534 (Online says should be higher than 667) Total IgA is 59 (online says should be higher than 79-but that seems high) Total IgM is 61 (online says should be higher than 40) These are low (but on the chart) on the reference range provided by the lab, but clinically low on a chart I found for 6-8 year old kids. ...
  10. Oli's Mom
    So, we got his results back! He is low in all of his IgGs, especially IgG1 (421). The IgA is normal. His TT IgA was only 2.3 and his TT IgG was 0.48. So the Celiac tests were negative, but I wonder if his low over all globulins had anything to do with this? The GI will call me on Tuesday. I'm wondering how much I should push for the biopsy or just...
  11. Oli's Mom
    Thank you so much Lisa, for the info. I'll be sure to post when we get his results back!
  12. Oli's Mom
    Hello! My 6 year old son has a long history of medical issues. He has craniosynostosis, which was treated last year (with major surgery to open his skull and reshape it). Starting in January 2012, he began having fevers and mid abdominal pains. He weighed 40 pound then. He continued to look pale and thin, so he had every test run my pedi could...
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