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ldslara

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ldslara

  1. ldslara
    It hard to say how long I had it before diagnosis. About 6 months before I started having itchy eczema in my scalp that began to spread all over my body, my tongue was very sore and irritated, and my iron dropped very low. I also started to have hair fall out. I was reading an article about the low iron and it mentioned celiac disease as a possible cause...
  2. ldslara
    Hi! Hope someone can help me with my blood test results. I've been gluten free 4 months and I had my (tTG) IgA checked to see how it was going. 4 months ago it was 94 (above 10 was positive). Now it is 3 (0-3 is negative). Is it even possible that my score has gone down that much? I though it would have gone down by half at the most. The reason that...
  3. ldslara
    Thanks for your replys. His EMA was negative, and his Iron level was fine, but I don't think they checked his Vitamin D. For now he's decided to go on a gluten free diet to see if his TTG go down to normal levels. He wants to avoid follow up endoscopies (GI said he would need to do them periodically to check for damage, probably every few years) and symptoms...
  4. ldslara
    I have some questions on testing that I'm hoping someone can answer for me...Can a person have a positive TTG blood test for no reason? If a person has a positive TTG, and 1st degree relatives that have celiac disease, but has a negative biopsy and no apparent physical symptoms, is it really safe for him to remain on a gluten diet? Are just the elevated...
  5. ldslara
    My 14 year old daughter tested negative on the celiac disease blood test panel, but has always had skin rashes including Keratosis pilaris on her upper arms for several years. She also complains of aching joints. Since both her brothers and I tested positive on the celiac panel and have been dx with Celiac disease, and our home is now gluten-free, I convinced...
  6. ldslara
    I can see how doing the endoscopy would be good to know a little more and provide a baseline, and has a small chance of being useful if his numbers don't go down on a gluten free diet, but the expense, discomfort, and uncertainty about the meaning of the result makes the whole procedure seems more trouble than its worth right now. Plus I just read a study...
  7. ldslara
    So he had his Pediatric Gastroentronologist appt yesterday. The doctors said he felt the odds were 50/50 that they would find damage if they did do the endoscopy. He recommended we do one, becuase it would help us to be surer that a gluten free diet was really necessary. He is willing to dx him offically - write letters, or whatever is necessary, to get...
  8. ldslara
    In November both my 8 yr old son and I were diagnose by Gastroenterologists with Celiac disease based on TTG Iga blood tests of above 100, positive Endomysial AB IgA tests, family history (1st and 2nd degree relatives with dx Celiac), and moderate symptoms (no endoscopy). My 11 yr old son had a weak positive score on the (tTG) IgA of a 4 (the scale said...
  9. ldslara
    Hi! I started eating gluten free about a month ago and have some questions about avoiding gluten in processed foods. I know, avoiding processed food is a good idea in general, but when I do partake, is a food safe if it doesn't say "wheat" "barley" or "rye" in the ingredient list, or is it really more compicated than that? My understanding is that any product...
  10. ldslara
    Nope, we didn't have the DGP. Maybe the pediatric gastroentronologist will order that next? Really, I think he'll want to do an endoscopy now with him. With my other son he said he was fine skipping it since his IGA was over 100, that we could dx based on the blood test alone if I preferred that. But wiith these results for my older son I think the only...
  11. ldslara
    We consulted my younger sons gastroentronologist, and he advised us to get the full panel. He didn't seem to think the high immunogloubin was important (and he seemed doubtful that the weak positive meant anything either). We went through another lab, (the first one sent the results to be interpreted at as Labrotory Corporation of America, and they lost some...
  12. ldslara
    My eight year old son received a positive blood (TTG) IgA test of >100 about a month ago after I called his pediatrician and asked he get the test due to our family history and some recent symptoms we had that led me to suspect we might both have the disease. When the results came in the doctor's nurse called me right away, gave me the number of a Pediatric...
  13. ldslara
    Sorry megsybeth, didn't see your post about that last question. I appreciate that information. I am sure finding out is for the best, and think the diet will be good for us, I just wish we could just get the testing done with already! Guess I need to be more patient, I just hate waiting for tests and appts and having to continue on the gluten foods knowing...
  14. ldslara
    So why get a full panel with my younger son? His score is so high, I don't understand why he would need more blood tests. What more would they tell me? Maybe the endoscopy to confirm, but even then several studies have shown that if a score on the (tTG) IgA is 5 times more than normal it correlates at 100% with a biopsy. So I feel like I should push for...
  15. ldslara
    So, to update, my older sons score on the Immunoglobulin A was 287 and normal is 62-236, so again it was a little high.
  16. ldslara
    Hi. My father was Dx with celiac disease a few years ago and I just recently realized I have many symptoms as well. I have not tested yet becuase I was using steroid cream to treat eczema, so I went off them to test. In the meantime, I decided to test my kids. The only tests that were done were the (tTG) IGA and the Immunoglobulin A, Qn, Serum. I would...
  17. ldslara
    To give a bit more information, my dad tested positive for celiac disease several years ago, and I just clued in on the idea that I had symptoms. I have been having alot of eczema in the last six months, and had been prescribed steroid creams that hadn't helped much. I also started having more digestion problems. When I realized those symptoms could be...
  18. ldslara
    This is my first post, but I've been reading through the forum for about a week and really appreciate what a resource this community already is to me. My 8 yr old son's (TtG) IgA test a week ago was off the chart. The test says >10 is positive, and his was >100. We have an appt with a Ped GI on Dec 4. I've read a couple of studies that with this...
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