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elbar

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  1. I would like ideas on what to eat for lunch. I work three days a week and eat lunch at work. I can manage when I am at home but it's those 3 days that are a problem. Does anyone have any suggestions? I don't have any gluten-free bread in the house, and judging by past experience, don't expect to buy any soon. I do like the rice crackers so that helps...
  2. Thank you everyone for responding. To answer some questions, I am currently seeing an allergist and he's trying to figure out what's wrong with me. He said that even if I had celiac disease 56 years ago, it's possible to not have it show up now. He's doing loads of tests so if I hadn't had all the necessary tests previously, I have now. I have had several...
  3. Thank you for your responses. I haven't been gluten free for 56 years but have had the rash that I believe is Dermatitis Herpetiformis for as long as I can remember. It's because I know once you are a celiac, you are always a celiac. That is the main reason I keep feeling I have the disease in spite of what all the doctors and tests say. This website...
  4. I have had just about every available test for celiac disease and they have all come out negative. However, I believe I have all the symptoms and because I had celiac disease from the age of 8 months old to eight years old, I deeply believe that I still have it. All the doctors that I have seen say they are complexed about it and that I am "Unique". My...
  5. I'm sorry my question wasn't as clear as it could be. The reason I started thinking about celiac disease again after all these years was that my dermatologist diagnosed DH the first time I went to her with this weird skin rash. When my history was taken, she seemed quite definite about the diagnosis. Then, I went through all these tests and even though...
  6. I have had every test possible for celiac and/or DH and they have all come back negative. These include endoscopies, blood tests, biopsies, etc. I was diagnosed 58 years ago with celiac disease and, therefore, am concerned that if I can't be cured, as they once thought I was after 8 years on a special diet (they didn't know about gluten then - I just couldn...
  7. Good Morning everyone, I have been dealing with the possible diagnosis of DH and hope someone in this forum can answer my question. I have recently had all blood work, given stool samples, had an endoscopy and colonoscopy for the diagnosis of celiac disease and they have all been negative. However, since I was diagnosed with Celiac Disease at the age...
  8. Has anyone ever tried this? The information is from the Celiac.com website and sounds very promising. I have tested negative on both the endoscopy and blood test, however, have reason to believe both tests weren't correct in their response. I had Celiac Disease for the first 8 years of my life and find it hard to believe, in view of everything that I have...
  9. I need help with staying on a gluten-free diet. In August, I was advised that I had DH and had to have a gluten-free diet. I started immediately and for the first three weeks felt great. I hadn't had any intestinal problems and if it was celiac disease, it was only manifesting itself in the skin. (I was diagnosed with celiac disease 62 years ago and have...
  10. elbar

    ARCHIVED Dh

    I have had an endoscopy, internal biopsy and the IgA antibody test and all reports are negative for celiac disease. However, I think I have DH (I am getting a skin biopsy tomorrow for the final piece of the puzzle) and have a question. Could I still have DH with everything else, including blood work (my IgA was 3) being negative for celiac disease? ...
  11. Is it possible to have Celiac Disease when all endoscopy, internal biopsies and celiac blood test say otherwise? I think I may have DH and I'm having a skin biopsy at the end of this week but I am concerned about it and would like to find out more about the chances of having Celiac Disease and not having any tests confirm it. I was diagnosed with Celiac...
  12. Hi, I have always been told that I was diagnosed with celiac disease at approximately 7-8 months old and was on a special diet for 8 years. During that time, the only food that I could have a lot of were bananas and I had terrible diarrhea during that time. My parents were told I was cured, but as I got older, and the Internet became available, I went...
  13. I need advice and am hoping to get it here. I was diagnosed with celiac disease 62 years ago and after 8 years on a special diet, my family was informed that I was cured. Apparently, according to Canadian medical journals, if it can be caught before a year, it can be cured, or so I always believed! Now, 54 years after the "cure", I went to a dermatologist...
  14. I had an endoscopy and biopsy last week and am now awaiting the results. The doctor said initially, after doing the endoscopy, that he didn't see any evidence of celiac disease. What I would like to know is, will the biopsy show anything that the endoscopy doesn't show? Just what does a biopsy look for and how long do you have to have been on a gluten...
  15. I am looking for an answer to a question that I have been wondering about for a while. I was diagnosed with celiac disease as a baby 62 years ago and my family was told that I was "cured" after 8 years on the special diet. Now I have found out that, while I didn't get any G.I. symptoms over these 54 years, apparently I did have DH symptoms and that was...
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