MandeeTheGreat

He refused to do the biopsy. He said it would be a waste to do one because he was 100% sure that it was DH based on my symptoms and from how it looks. Should I not trust his diagnosis since he didnt do a biopsy? Dangit, now I am even more confused.

Its not if it matter or not that they disagree Its that I want to know for various reasons if I have celiacs. I need to know if I need to get my kids tested and alert other family of it. I want to know so that I can be best treated for the issues I have going on and monitored regularly for.other issues. So basically i just want to make sure I have any testing...

Unfortunately I already have been gluten free for a little while. I am hoping that the dh diagnosis is enough for them to test for nutriitional defciencies and related conditions. I know I need to stay.gluten free forever but I wan.to make sure it didnt cause other issues. Like I bruise when I even itch my leg and my hair is falling out. I cant handle going...

Just an update in case someone comes across this and wants to know what the outcome was. It was diagnosed as DH and I was referred to a GI doc for more testing.

Here are some pictures of the rash I have. It starts out just itchy skin but then little fluid filled spots pop up. They are incredibly itchy. I cant stop myself from itching and most creams or remedies make it worse. The way it looks now is after I scratch it all open on my sleep, I wish i had a picture of the fluid filled bumps. Then it will heal all up...

Thank you for that information. Is there any way to be tested without consuming gluten? I dont think I could handle being that sick just to test for it. I recently had a breakout of the DH but now its healing up. I am not sure if it can still be tested if its not new?? I guess I am off to do more research. I have a hard time accepting that I could have celiac

Does anyone know if the gluten rash "Dermatitis herpetiformis" occurs only with Celiac disease or can it occur with gluten intolerance as well? I am getting mixed results while researching. Are there any benefits to being diagnosed Celiac? I get very ill from eating wheat (gastrointestinal symptoms, lethargy, gluten rash, nausea, foggy mind, stomach cramps...