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Leis

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Everything posted by Leis

  1. Leis
    Thank you for replying again, its very kind of you all. Cavernio, i will take the article in with me. I was going to take one about gluten ataxia too. I hope it doesnt get the neuros back up. I cant get an appointment for another two weeks! I have been downing lots of b12 and the tingling extremities and hands falling asleep ive had for years is alot...
  2. Leis
    Hi, thank you all so much for your replies. Cavernio, thank you for your great explanation. It makes sense to me. Ive never been diagnosed celiac but the lifting of brain fog ive had since i went gluten free makes me think i may be. Im really hoping this is a b12 problem and not ms, obviously. I would imagine i was very low in b12 when i started the...
  3. Leis
    Hi, im back again with another theory. I wrote last week how i started a gluten free diet and after about a month started to slur my words. It got quite bad, tongue swelled up and i was finding it hard to form sentences. I went to a and e, then did a brain scan. I was sent for MRI told i probably have MS. I havent spoke to a neurologist yet, just waiting...
  4. Leis
    Thanks Nvsmom for that info. Yeah, it doesnt really matter if i am or not i guess. I definitely wont be eating it again. Take care Leis x
  5. Leis
    Hi, no it was about a year ago i had that test done and i was eating gluten. I assumed i didnt have a problem with it from the test being negative. Thanks.
  6. Leis
    Hello Just a quick question, i was tested for endomysial antibody iga when i asked the dr for a celiac test. I have CFS and thought it might be the cause. I have a copy of the results, they just say "endomysia antibody iga N". Is this test alone enough to prove im not celiac? I went gluten free a couple of months ago and feel clearer headed so wont...
  7. Leis
    Thank you Kamma, youve been very helpful and kind. Thanks for letting me know what to expect in the EPT test. Ill let you know how i get on. x Thanks VeggieGirl, that sounds like it would be a great idea. I will definitely get in touch with you for more details, if you dont mind. Provided i dont come out positive for MS that is . Take care Leis...
  8. Leis
    Thank you again Kammy for helping. I didnt even read his background info or anything! Im not thinking straight. Ive read the articles by Hadjivassilliou and Im going to print them out and take them with me. I think the one with the four MRI images will hopefully convince him to listen to me. Hadjivassilliou is in Sheffield and im in Glasgow so if...
  9. Leis
    Thanks for your replies and thanks Kamma for all the links. I will read up more and maybe take some print outs with me. Im feeling less confident today that its the gluten. I wrote my story on Dr Charles Parkers web page, an expert in gluten and this is what he said: Leis, Highly unlike that was related to withdrawal from Gluten – more likely i...
  10. Leis
    Thank you everyone, your posts have made me cry with hope. Thank you for taking the time to write to me and give me al this info. I have more testing next week, i think clinical and looking in my eyes and things. There has been about 3 people look at my scans because my cousin works at the hospital and got a second opinion. They said is some kind of ms...
  11. Leis
    Hi, ive been gluten free about 5 weeks. I had been housebound with CFS. After a couple of weeks off gluten i was feeling much better so much clearer in the head. Then about 3 weeks in my speech started to slur a bit then my tongue swelled up and once it went down my speech was so bad, stammering, stuttering, slurring. I had thought it was a withdrawal...
  12. Leis
    Well its still swollen today but my inner cheeks seem to be more of a problem. Theyve swelled up quite alot in the night! Quite sore too as my teeth are cutting them and my tongue. I tried an anti histamine last night but it didnt make much difference. Im going to stay away from milk today and see if that helps! Thanks Leis x
  13. Leis
    Thanks for your replies. I was thinking maybe an allergy was showing up. Think it might be milk, i drink the lactose free stuff as im lactose intolerant. Boo, i hope not. The inside of my cheeks are swollen too, i hope this isnt going to happen all the time.
  14. Leis
    Thanks Kareng My boyfriend looks after me. I dont think its a stroke as it came on gradually over the week. I thought it might be an allergy but ive been eating quite simple food and nothing that ive never had before. Its not hugely swollen, just feels big in my mouth and is over my teeth instead of inbetween them. I think its just too swollen to form...
  15. Leis
    Hello I started a gluten free diet 3 weeks ago. I have been bedbound for 11 years witha diagnosis of cfs. I have been feeling a bit more clear headed but the last week ive started to slur my words. Ive never had this before. Today people cant understand me at all. Its really got me quite scared. I think my tongue is swollen. Why is this happening...
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