SeekingSarah

Good luck, make sure that SED rate gets followed up in case there is something else going on. I see my FL PCP in a couple weeks, she is more receptive to my concerns since she has treated me for 9 years, she is on top of the SED rate, after the 84 one in May I found out from another doc that I had a common bac infection occurring so that might explain...

Well I'm hoping if I can get some sort of DX for myself...it will encourage my sister and my mom to steer him in the right direction for his issue. I have little say, but for a kid who rarely would ask for something for him to bring up these things to my mom show they must be bothering him.

When I first read about Celiac I told my mom I wondered if my nephew's mild behavior issues growing up were due to it? Well just spent weekend with him, he is 18, noticed right off he has a sore spot on his LIP exact spot where I get one. He also has rash on his chin like I get. Then during lunch he was not eating and told my Mom that food makes him sick...

The "rash" or skin issue I have are either yellow blisters on my face, or hard painful bumps that are not pimplelike (no core or head). Just had a few tiny sores appear on my chest, again, I have visible scars from previous outbreaks. Face, scalp, neck/hairline, back, chest, scars on arms from previous sores, bump on roof of mouth, and blister cluster in...

Any thought to why GI issues are worse in the morning? I spend at least and hour in the bathroom, just cannot empty bowels, not constipated per say, just cannot move everything out., stomach continues to cramp the rest of the morning, might actually need to have another BM or it's just cramping...maybe mucus, but I feel completely wiped out many times I just...

Yes, I know that...as I stated the IBS, Low Vit D, Low B-12 and the anemia can come be after effects of gastric bypass but they are all also related to Celiac or Gluten, intolerance as is the skin rash, acid reflux, missed periods, night sweats, weight gain...etc.etc.etc.etc.etc. Thus the reason I'd like some real answers instead of just blaming the surgery...

Just got my retested SED rate via the patient portal...it's now 86. Something's not right....awaiting to see what PCP will recommend tested this week. The local doctor who ran the original SED rate that was 65 has NEVER said a thing about it....grrrr hate some doctors.

What is the name of the cheek swab genetic test?

Oh geez I think I could easily find someone to discredit a test...that is IF they'd even give me a test! Especially now that the initial blood panel was neg, the derm was like "why biopsy if the blood test was negative?"....isn't a skin biopsy needed for dx of OTHER skin issues too? But after her show of ignorance I now longer trusted she'd even do the DH...

My Celiac panel was neg, very high Total Serum Iga? High SED rate 65. PCP who has treated me for the past 9 years is back from maternity leave and is said Celiac wouldn't account for that high of SED rate, she ordered it retested (from FL, I am now in Ohio) waiting to see if it's still high. Saw local dermatologist about skin rash, she refused to do a biopsy...

NP said "well if the blood test were negative? then why test?" Hmmmmm how about you should biopsy a persistent skin rash in general before you go prescribing medication??? So then the doctor comes in and says she has two other patients with DH and my rash is not the areas that DH presents. Really...currently on face, neck, back, scalp...scars on arms...

There is also the option of Gastric Sleeve, they do not bypass intestine, but no foreign object in you that can slip or cause erosion. As someone in the opposite position it is good that he was DX before surgery. In general, I don't see a lot of information re: weight loss surgery and celiac...so even his surgeon might not have definite answers. You...

I am 35... my Total serum was high and my SED rate was 65 (normal 20)...other celiac panel was neg. Hitting roadblock at getting skin rash biopsied. PCP is concerned with SED rate, wants it rechecked....surprise the GI doc who ordered it never called about it.

Is Dr. Ackerman still at OSU? I'm not finding one on the website, just an anesthesia doctor.

I even told the derm today that I was hoping for a biopsy of skin to see if it's DH before I decide whether to have an endoscopy biopsy...as in you know let's do a non-invasive office procedure before I have to go under anesthesia, etc. and STILL she brushed off the possibility it was gluten related or any REAL diagnosis of the skin rash...instead it is dx...