momma bee

Better if i just remove response wow!

Thank you tarnalbenrry, I think putting it in writing is a good plan. I will try that tomorrow first thing in the morning. Kareng all I can say is "wow"! Negligent? Wow!

Wow... Attempting to remove post

Can't tell you the chances but can say my daughter was 15 months on diagnosis, blood tests were ALL negative but had sufficient IGA. Her endoscopy clearly showed multiple signs of celiac. So I would think with that then even one positive would be best to confirm. The scope itself is not that bad of an experience. She was drinking formula up until the...

I think he is not ruling it out yet or he wouldn't be doing the biopsy. Fantastic they can get it done so quickly! The scope itself can show other issues she is having if there are other issues so it is useful for more then celiac. We were also told with our daughter being one year old the damage is less likely to be visual and after the scope the GI doc...

That is great!!!

Awww that sucks! Hugs sent your way! Definitely better for your little one but so hard to wait longer fingers crossed! And hug to you to feel better!

That is great! Treatable! Hope resolves quickly!

We had the same tests run here on our family once our littlest one was diagnosed and we all came back negative as well (but hers had been negative as well)... I am wondering too if more tests need to be run to be sure! Seems odd and a bit un-nerving! Good luck and let us know if they agree to run more tests in you all...I am thinking when finally meet...

My little one was 16 months for hers and I was not keen on it, she was having adenoids out as well, but to be honest she did way better with it then my 3 year old! As mentioned, harder on you then her! She was similar in that could not get enough to eat and just wanted to cuddle and sleep. Slept a lot that day and cuddled a lot and was "normal" by the next...

Oh... Also just to add that if the plateleta are low or if there are irregularities in the CBC blood work the Dr can add on or send for more blood testing for sure, sometimes you don't even need to be poked again to do so. So they may get more platelet detail like the mean etc... They also might add in or order a peripheral smear which looks specifically...

That is rough... I send hugs too... I agree with nvsmomma that it doesn't really sound like it to me either but am very new to it. As she mentioned with itp it is usually diagnosed almost exclusively by platelet count alone and then other tests are used to veryify it is itp and that nothing else is causing the low platelet counts. So unless they are telling...

Thanks for all that info! And glad to hear the spleenectomy worked for you... Most internet/forum people active are ones where it didn't work and so was worrying me as heading that way too... Prednisone not helping so weaning and waiting... There are newer treatments but not good options for me as I have some blood marrow abnormalities... So thank you for...

Goodness... So many little things to think of! Wow! That makes total sense and is so sad when trying to do the right thing that it is not glad you guys posted this for everyone who wouldn't think of it!

Thanks for your reply. Sorry you have had such a complicates time if it!! I know they say the autoimmune issues run together and yours sounds like a classic case, I think perhaps mine as well now (had thyroid cancer in the past). Think I shall push for the testing to be more sure.... Might as well, what's a little more blood on the daily draws! Thanks...