momma bee

Thanks! Hadn't really thought much about fiber as she seems to go so often and mostly worried about iron rich foods but good point!!! Should think of that more! So many different things to think if and keep track of! Thanks!

Hello fellow parents, I am perplexed about assessing my daughters poop. She is only 18 months and as such can't tall is how she is feeling but she is a whole different child then before her diagnosis and going gluten free. So happy and catching up her milestones!!! We have been gluten free for about 8-9 weeks I would guess now. What is perplexing me is that she has always had frequent loose stools, odd colors with a bit of greys and greens but more and more brown. The last two weeks her stools have been more formed and she has been having trouble passing them, crying and hiding in corner to poop. They also the last few weeks have occasionally grey "streaks" almost like a rainbow running through them and today it was a black rainbow. Any thoughts on if this is from gluten? Does the gluten change the color of the poop if cross contamination occurs?

Yes, my daughter did the spitting the food out too!  Wow!  They have many similarities so I have been following your thread!  Are they treating her for reflux at all?  My daughter had done the spitting it out, got better temporarily with going gluten free but then it emerged again, we went back to our pediatrician who is thinking it is reflux so she doesn't want to swallow because it hurts so he is treating her for reflux and she has stopped spitting the food out and appetite has improved again.  They also had her on the same meds for this prior to scoping for EE as the GI specialist wanted to make sure what he was seeing wasn't "just" reflux and she needed to be on it for a while, so if she is not being treated for that it might be worth asking the pediatrician about.

Hopefully your referrals go through quickly, and the same for the sleep study- that can be slow to arrange.  We had had ours done prior to seeing ENT through a pulmonologist- are you seeing one?  If they are thinking central sleep apnea it also is likely a specialist you should get started on a referral for if not.  I am in Canada too and the wait time for that specialist can wait at times...  

Are they doing a full sleep study then for the apnea? For our daughter they also suspect some central sleep apnea but they felt adenoids still had some contribution so did remove adenoids and then will repeat the sleep study in may and if some apnea remains will start clap. As a mom don't like the delay in cpap! Don't like thinking of her jot getting enough oxygen regularly! But for us to be honest the adenoid removal doesn't seem to have had much effect to the naked eye on snoring or apnea as it still seems quite evident. So maybe a blessing to not have to do it yet. Especially if allergist is in tune! Hope you can sort some if it out quickly. It is tough waiting and coordinating these opinions etc...

Our little one was so similar. She had ENT surgery at 15 months for sleep apnea, chronic sinus issues etc... When we saw our ent they got GI surgeon involved so they could scope during the surgery since he also suspected EE. In our case the scope result was negative for EE and positive for celiac. We are still unsure however if perhaps the EE triggers weren't there though as she is so much better with gluten free but still chokes frequently, gags and has some issues with eating. So there is still some suspicion of it I think?

The ENT here was pretty certain would be EE as he said "something" had to be making her adenoids and tonsils so huge... is that what your ent has said? Are you able to get scoping with the surgery? It was nice having all done at once.

Just a question but after my baby was diagnosed with celiac by biopsy it was recommended we all as first degree relatives get tested. We proceeded to do that and my one child, my husband and myself all have some potential symptoms. All of us by our various different drs were all ordered only the tTg IgA test and all have come back negative so we were relieved. However, after the relief has past I am getting a tad but curious as my baby's blood tests were all negative (but she made enough antibodies). If hers were not positive but her biopsy was does that mean we all might actually be in the same position that this would be a false screen on its own?

Thanks! I didn't know there was a seasonal component. I was just thinking food/home environment etc... I am still wondering about EE a bit as it seems better some days then others. I am still really curious about oral motor issues as well but her speech is pretty advanced which I figured meant her oral skills would likely be pretty good? Maybe will ask ped about both potentials. Thanks!

Thanks for your reply! And sorry to hear it was so delayed for you finding out about the intolerances! I am glad to hear this though as perhaps I should just try without and see what happens as you suggest. Shouldn't be harmful, just more work in preparing and trying to think of food options! Just not sure what to eliminate- we stopped egg as it seemed to make her vomit but was so subjective, could try dairy and do you think soy is a likely culprit too?

Thanks for your responses. Yes it is definitely choking and affecting her breathing. I was wondering if maybe something oral or motor since doesn't seem to be structural. But I think I will advocate for a swallow study perhaps. Can't be "normal" when it is getting so much worse can it?

She does snore and has sleep apnea and actually had her adenoids removed the same day of the scope (so just in February). We have seen some improvement with snoring and apnea but not a significant improvement and they think sleep apnea remains so we are awaiting reassessment for that and they think perhaps cpap machine for sleep apnea but we will see in may they said. Good luck with your adenoid and tonsil check, if need be the surgery itself really isn't that bad for the wee ones. But good luck with the appointment! Maybe the choking is all related tonsils?

So much complicated information and figuring it all out! Thanks for you answers! Have to remind myself many things she has won't be related to the celiac but hard to know for sure when it is so new!

I have a 17 month old baby who is now just over one month gluten free.  What I am wondering about is how you might know in a baby if they had other food allergies or intolerances?  Any suggestions?  The pulmonologist and pediatrician in the past have both told me "not to worry" about potential allergies and have said "nothing will show" on tests at her age anyways.  With her being unable to really communicate to me though I do not know how I would know, and many nights she seems to wake up or just before she goes to sleep she has extreme abdominal pain with arching back and screaming or crying until she falls asleep and only being held upright will console her.  Any advice?  And do you think I should take her back and ask again for allergy testing?

Hi everyone,  I am new to this forum.  My daughter is 17 months old and has been dignosed celiac from a scope Feb 14/2013.  She has been gluten free since the date that we found out.  She seems to be doing much better in many ways but she is persistently choking on foods- soft foods, crunchy foods, purees, all sorts of foods.  Does anyone else have a child/baby that chokes frequently?  Does anyone know if choking can be associated with celiac in any way?  They initially thought she had esophageal eosinphila (and scoping for that they suprisingly found celiac).  She did not have evidence of esophageal eosinophila so I am perplexed if there is anything else that could be making her choke. Hard to figure all this out so just wanting to see if anyone else has ideas?