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amicamom

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  1. Hi! It has been a little over two years since we took our little baby off gluten. I just wanted to check back in and update this post. Everything is going great! She is doing well off of gluten. She is still "thin" but tall for her age and thriving!! Since then we have found out that two more family members have the same issues. I've written a...
  2. Bethany had her visit with the pediatric gastroenterologist yesterday. He was a great doctor and actually took the time to explain everything very careflully. He said he gives lectures on celiac to other doctors and he seemed to be very up-to-date on the information he gave me. I had done so much web research that I think I would have known if he was a joke...
  3. Yes, I've read the book "Dangerous Grains" and enjoyed it. My husband and I have decided to put our entire family on a gluten-free diet for now. However, I really want to know what is wrong with Bethany and WHY. No one ever figured out what I had as a child and we haven't been able to figure out what is wrong with Bethany or Charity. I would like to know...
  4. Celiac Disease Comprehensive Panel tests are back...I AM FLABBERGASTED TO SAY THE LEAST...Charity, Bethany and I all tested NEGATIVE for Celiac Disease. Bethany - TTG Antibody IGA <3 (negative is anything <5) Bethany - Gliadin Antibody (IGA <3 (negative is anything <11) Charity - TTG Angibody IGA <3 (negative is anything <5) Charity...
  5. Celiac Disease Comprehensive Panel tests are back...I AM FLABBERGASTED TO SAY THE LEAST...Charity, Bethany and I all tested NEGATIVE for Celiac Disease. Bethany - TTG Antibody IGA <3 (negative is anything <5) Bethany - Gliadin Antibody (IGA <3 (negative is anything <11) Charity - TTG Angibody IGA <3 (negative is anything <5) Charity...
  6. Thank you all so much for your help! We took little Bethany in to be weighed this morning (they are monitoring it very carefully) and she had gone from 14 lbs last Thursday to 16.5 lbs this morning!! The nurse and I could hardly believe our eyes! She has followed a gluten-free diet since Sunday and her diarrhea has stopped completely and her appetite...
  7. I am considering being tested for Celiac Disease using EnteroLab. Please share your experiences with this method. How useful was it? How accurate is it? Will insurance pay for it? Thanks!
  8. Thank you all so much for your support and advice! We have put Charity (our 3-year-old) and Bethany (our starving 11-month-old) on a gluten-free diet since Sunday. Bethany's diarrhea has stopped already! I am so excited. I am in the process of trying to be tested myself. I think Charity and I are going to get the blood test and depending on what they...
  9. Hi. This website has been a gift from God. I am excited and very thankful to find a place to ask questions about celiac disease in children. Please help me!! Let me start with a few questions... 1. Has anyone ever had a very young baby present with celiac disease? 2. Has anyone ever noticed a reaction to baby rice cereal or formula? 3. How...
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