dbygones

Hi nvsmom, thanks for your answer; I don't know what tests they ran - even my rubbish doc said he just had the 'negative' from the hospital and doesn't know what tests were done. Personally I think he should have to retake his exams! I'll drop down to 'gluten-lite' for a while until I have a better idea when I might get an endo... my pharmacist agreed...

Hi, I'm in Scotland (only posted once here a while ago so don't expect you to remember me) I finally got my blood tests results, and my doctor says they were negative. He has said he will speak to the gastroenterologist to ask where we go from here; apparently he has told my doctor previously that the incidence of false negatives is down as low as 5%...

Really pleased for you! I was scrolling down and thinking how badly the system can work sometimes and wondering if you would get anywhere by logging a complaint - very pleased you've got a cancellation! Hope your boy is feeling much better very soon

Thanks, both; I thought it might be something like that. yes there is a lot isn't there! I have been doing a lot of reading - this site is gold dust. It's stupid; if the NHS says that coeliacs can have gluten-free on prescription then surely anyone who can't tolerate gluten should get the same treatment - I don't know but can imagine that a gluten intolerance...

Thanks Mindwarp, that's really helpful! I'll try to ask around about different docs who might not bother with a biopsy. My diet is already quite basic coz I'm (almost) vegan - but it would really help to be able to get 'pure' oats and flours, and cereal. (I still lapse on dairy occasionally and I'm only just learning to cook with egg replacer and tofu......

Hi there. Like many others I've found this place trying to find an answer for my health issues; unlike most on here I'm from the UK (Scotland) so have to do battle with the NHS now! I've just moved up here from England, so new doctor; when I first started to feel like this I asked him to test for hyperthyroidism as I had it a couple of years ago. That test...